Abstract

Addressing Lupus Health Disparities to Create a Healthier Nation of Women

Thometta Cozart, MS, MPH, CPH, CHES1, Steve Owens, MD, MPH, MS2 and Elizabeth Traore, MPH1
(1)Directors of Health Promotion and Education, Washington, DC, (2)Epilepsy Foundation, Landover, MD

APHA 2017 Annual Meeting & Expo (Nov. 4 - Nov. 8)

Lupus is a chronic, autoimmune disease that can damage any part of the body. Current research shows that at least 1.5 million Americans have lupus, and women of color are two to three times more likely to develop lupus than Caucasians, according to the Lupus Foundation of America. Practicing health professionals and trainees require early access to resources to enhance their ability to recognize and diagnose lupus in a timely manner. Lack of provider knowledge and cultural competence in recognizing lupus signs and symptoms could delay individuals being diagnosed with lupus and lead to premature death. The national Office of Minority Health funded the Directors of Health Promotion and Education (DHPE) to implement a national lupus health education program. DHPE's project is focused on reducing the average diagnosis time of 2 to 6 years. DHPE and its partners, the American College of Rheumatology and WebMD, have implemented the following strategies in less than a year: Promoted CLAS online lupus trainings to more than 500 clinicians and health educators; Awarded nine mini-grants to health agencies and community and faith-based organizations to reach more than 5,000 individuals; Piloted community-clinical linkages for lupus education and awareness in a rural county in NC between the local health department and six churches; and Established effective partnerships to dissemination lupus education resources to program participants and the target population of women of color. More than 300,000 media impressions were captured in traditional and social media to increase lupus health education during this project.

Administer health education strategies, interventions and programs Assessment of individual and community needs for health education Chronic disease management and prevention Diversity and culture Planning of health education strategies, interventions, and programs Program planning