Abstract
Health literacy of HPV and HTLV Infection pathophysiologies in Shipibo-Konibo women: A traditional arts-based study
Shilpa Darivemula, MS and Ann Rutter, MD, MS
Albany Medical College, Albany, NY
APHA's 2018 Annual Meeting & Expo (Nov. 10 - Nov. 14)
Despite the advent of adequate screening and vaccination for HPV, cervical cancer remains the fourth most common female cancer worldwide. This disparity is due to inadequate access and availability of the vaccine with inconsistent screenings in developing countries, where 57% of infection cases and 65% of cervical cancer deaths worldwide occur. The risk is especially high in Peru, where cervical cancer is the most common female cancer and is the second leading cause of female cancer deaths overall. HPV infections in disenfranchised indigenous migrant communities on the outskirts of Lima have not been extensively studied. One group of women who are especially affected by HPV are the Shipibo-Konibo (SK) women. SK communities live together in the Lima-Cantagallo slum, where the Shipibo, not Peruvian, culture of communal sharing, language, and particular female sexual customs prevail. Studies by Blas et al indicate an increased prevalence of HTLV co-infection with HPV, noting that HTLV infections could be due to Shipibo customs of prolonged and shared breastfeeding, tattoos, and polygyny. No causative relationship between HTLV and HPV-induced neoplasia was established. There is critical lack of epidemiologic studies on solely HPV infections and HPV health literacy of Shipibo women or the cultural customs and socioeconomic barriers to accessing care. Data collection is based on two processes. The first process is surveying the rates of HPV infection, HPV and HTLV infection, and HTLV infection alone and outcomes from treatment, if any, through retrospective chart analysis at UNM. The second process is conducting open-ended interviews in Shipibo with the women of Cantagallo on their customs, their knowledge of HPV and HTLV infection, and their barriers to screening and treatment. Based on these responses, a traditional arts based programming for health literacy will be designed, implemented, and assessed with pre and post surveys on understanding of pathophysiology of HPV and HTLV infections and community ideas on how to decrease infection rates. The arts have long been used in public health literacy programming, but rarely has there been an effort to use traditional and local knowledge and arts to improve community health literacy. This project represents a qualitative and quantitative study aiming to introduce the Aseemkala Initiative model of traditional dance and arts use for public health programming with evidence from the Shipibo female community to measure impact. Understanding the barriers to HPV vaccinations and recognition of symptoms—patient health literacy—to seek care is vital in ensuring that vulnerable populations with high risk cultural customs gain access to life-saving care. This project also opens cross-cultural communication to develop optimal prevention and screening programming for this community.
Advocacy for health and health education Diversity and culture Epidemiology Planning of health education strategies, interventions, and programs Public health or related education Systems thinking models (conceptual and theoretical models), applications related to public health