Abstract
Developing and implementing a public health co-research training program for Special Olympics athletes
APHA 2022 Annual Meeting and Expo
Background: Most research on people with intellectual and developmental disabilities is not carried out by researchers with disabilities. We partnered with Special Olympics Massachusetts (SOMA), the leader in sport and health programming for this population in the state, to develop, implement, and evaluate a public health co-researcher training program for Special Olympics adult athletes.
Methods: We developed a six-session training program that incorporated existing resources and literature with new research components. Four SOMA athletes with previous experience as health messengers volunteered to participate. We conducted semi-structured interviews and group theme discussion sessions to evaluate the program.
Results: The program ran in the fall of 2021. Sessions covered research importance, team dynamics, data collection, analysis, and presentation. Program deliverables included lectures, activities, and a guided research project. Co-researchers developed a survey for SOMA coaches based on a research question of interest, analyzed results, and presented findings to instructors, friends, and families. Co-researchers reported that they enjoyed the course, loved learning new things, and were eager to be part of research teams.
Discussion: Our program was well received and feasible for implementors and participants. With its focus on physical activity and health, Special Olympics is a good partner for research training. Further, athletes should be part of evaluation and research conducted within Special Olympics programs as they are experts in their own wellbeing.