Abstract
Advancing epilepsy care and self-management for Latino spanish speaking patients through the use of a mobile web-based application (MINDSET 2.0)
APHA 2023 Annual Meeting and Expo
Purpose: To enhance Management Information Decision Support Epilepsy Tool (MINDSET), an online bilingual decision support for ESM to provide HCPs assessment (based on LWE self-report) and tailored recommendations for evidence-based ESM interventions for their LWE patients.
Methods: A phased development comprised: 1) content analysis to upgrade decision algorithms; 2) expert panel review; 3) manual and software upgrades; and 4) formative in-clinic evaluation with HCPs.
Results: The enhanced intervention, MINDSET 2.0, is web-based for increased accessibility, adds tailored recommendations to evidence-based CDC Managing Epilepsy Well programs (PACES, UPLIFT, HOBSCOTCH) to a pre-existing ESM patient Action Plan based on branched chain logic informed by the ESM scale, the QoLIE-10, the QoLIE-31 cognitive subscale, and the NDDI-E depression scale. Social determent needs are also added based on the Health Leader survey. HCPs rating MINDSET 2.0 positively and significant in increasing clinic encounter thoroughness and communication (p<0.05).
Conclusion: MINDSET 2.0 may contribute to decreased disparity in Latino epilepsy management. Further feasibility testing with LWEs and their HCPs is indicated.
Chronic disease management and prevention Clinical medicine applied in public health Implementation of health education strategies, interventions and programs Public health administration or related administration Public health or related public policy Social and behavioral sciences