Abstract

Advancing epilepsy care and self-management for Latino spanish speaking patients through the use of a mobile web-based application (MINDSET 2.0)

Refugio Sepulveda, PhD, MPH, MPA1, Ramses Sepulveda, MPA2, Ross Shegog, Professor3, Katarzyna Czerniak, MPH, PhD4, Alejandra Garcia Quintana, DDS, MPH5, Robert Addy, PhD6, Kimberly Martin7 and David Labiner, MD8
(1)The University of Arizona, Tucson, AZ, (2)The University of Arizona, Department of Health Promotion Sciences, Tucson, AZ, (3)UTHealth School of Public Health Houston, Houston, TX, (4)University of Texas Health Science Center, School of Public Health, Houston, TX, (5)UT Health Houston, Houston, TX, (6)UTHealth School of Public Health, Houston, TX, (7)Epilepsy Foundation Central & South Texas, San Antonio, TX, (8)University of Arizona, Tucson, AZ

APHA 2023 Annual Meeting and Expo

Background: Latinos with epilepsy (LWE) are at risk of disparities in managing their epilepsy due to 1) lack of awareness of epilepsy self-management (ESM) which is associated with improved seizure control, medication adherence, and quality-of-life, and 2) barriers to communicate about epilepsy, ESM, and social determinants that impact their condition. Health care providers (HCPs) are challenged to accurately assess LWE ESM and tailor an intervention plan. Increasing telemedicine consults underscore the importance of digital platforms in addressing this challenge.

Purpose: To enhance Management Information Decision Support Epilepsy Tool (MINDSET), an online bilingual decision support for ESM to provide HCPs assessment (based on LWE self-report) and tailored recommendations for evidence-based ESM interventions for their LWE patients.

Methods: A phased development comprised: 1) content analysis to upgrade decision algorithms; 2) expert panel review; 3) manual and software upgrades; and 4) formative in-clinic evaluation with HCPs.

Results: The enhanced intervention, MINDSET 2.0, is web-based for increased accessibility, adds tailored recommendations to evidence-based CDC Managing Epilepsy Well programs (PACES, UPLIFT, HOBSCOTCH) to a pre-existing ESM patient Action Plan based on branched chain logic informed by the ESM scale, the QoLIE-10, the QoLIE-31 cognitive subscale, and the NDDI-E depression scale. Social determent needs are also added based on the Health Leader survey. HCPs rating MINDSET 2.0 positively and significant in increasing clinic encounter thoroughness and communication (p<0.05).

Conclusion: MINDSET 2.0 may contribute to decreased disparity in Latino epilepsy management. Further feasibility testing with LWEs and their HCPs is indicated.

Chronic disease management and prevention Clinical medicine applied in public health Implementation of health education strategies, interventions and programs Public health administration or related administration Public health or related public policy Social and behavioral sciences