Session
Engage for Equity PLUS (E2PLUS): How CBPR Promotes Social Justice: Changing the Research Landscape of Academic Health Centers
APHA 2023 Annual Meeting and Expo
Abstract
Assessing the context within academic health institutions towards improving equity-based, community and patient engaged research
APHA 2023 Annual Meeting and Expo
Description: The Engage for Equity Plus intervention was aimed at improving supportive policies and practices towards equity-based, community and patient engaged research. To gain a deeper understanding of the institutional context in which community academic partnered research projects are supported. We used mixed methods that integrated findings from a survey (n=98) and qualitative interviews (n=9) and discussions (n=6 focus groups) with leadership, investigators, and community and patient partners.
Lessons learned: Across three institutions, the survey noted there were significant differences among the perceptions of academics and community partners about support for equity-oriented community engaged research (e.g., perceptions about leadership support). This was further supported by qualitative data. Specifically, several community and academic partners noted fiscal and administrative barriers and lack of sustained patient/community workflows when participating in research. Participants also noted the lack of training opportunities for academics and community partners, and the need to build relationships in the community, as opposed to focusing only on recruitment of minoritized communities into research.
Recommendations: Triangulating findings from the survey and qualitative data revealed critical barriers which provide important targets for interventions for improving supportive policies and practices towards equity-based, community and patient engaged research.
Conduct evaluation related to programs, research, and other areas of practice Implementation of health education strategies, interventions and programs Social and behavioral sciences
Abstract
Engage for equity: Engaging stakeholders to increase institutional support for community-based participatory research at an academic medical center
APHA 2023 Annual Meeting and Expo
Methods: The Engage for Equity Plus process included interviews (n=4), focus groups (n=2), and surveys (n=35) with leadership, faculty, and community partners to identify barriers to engaging in CBPR. Two strategic planning workshops with leadership, faculty, and community partners (n=25) provided opportunities to identify goals to address institutional barriers.
Results: Qualitative findings revealed three barriers to conducting CBPR at Stanford: 1) Lack of established infrastructure for CBPR; 2) Disparate understandings of community involvement in research; and 3) Inaccessibility of clinical care, education, and research for communities that experience marginalization. Survey findings revealed that most respondents answered no or don’t know to whether the institution demonstrates commitment to health equity (74%) and patient- and community-engaged research (85%). We identified three goals in strategic planning workshops: 1) Adapt Institutional Review Board procedures for CBPR; 2) Reform the post-award procedures for timely payment to partners; 3) Build capacity in CBPR among researchers and community partners.
Conclusions: We will present on progress towards these goals. Examples include documenting the specific IRB barriers for CBPR projects, developing workflows for CBPR partnerships to efficiently obtain research approvals and timely payments for partners, and galvanizing support for new staff hires and offices focused on CBPR. These efforts can inform the institutional support and infrastructure needed to catalyze CBPR to promote health equity.
Administration, management, leadership Diversity and culture Planning of health education strategies, interventions, and programs Public health or related research
Abstract
Addressing structural barriers to achieving cancer health equity in Washington state
APHA 2023 Annual Meeting and Expo
Methods. OCOE participated in the Engage for Equity Plus project (E2PLUS) and worked with a Champion Team, including representatives from the Consortium and community, to develop research capacity for community engaged research, with emphasis on underrepresented (UR) populations. Through facilitated E2PLUS workshops, a group of representatives from academia and community collaborated to identify opportunities for change. Interviews with executive leadership of each Consortium institution and surveys of investigators and community partners provided multi-level information.
Results. Lack of UR community participation on Consortium committees and processes is a structural barrier to cancer equity. Several strategies are being implemented: UR patient and community leaders have joined the Consortium executive board; Community Action Boards participated in Consortium strategic planning; an Office of Patient Engagement, that prioritizes engaging patients from UR communities, is being developed to consult on every stage of research; community engagement training/resources were expanded; and planning has begun for a Health Equity Steering Committee across the Consortium.
Conclusion. Participating in E2PLUS was the catalyst that helped the Consortium identify and begin to address structural issues impeding equity in cancer care and outcomes.
Conduct evaluation related to programs, research, and other areas of practice Implementation of health education strategies, interventions and programs Program planning Public health or related organizational policy, standards, or other guidelines
Abstract
Strengthening institutional infrastructures to promote community- centered research advancing health equity
APHA 2023 Annual Meeting and Expo
Methods: MSM partnered with the University of New Mexico Center for Participatory Research for the Engage for Equity Plus (E2PLUS) Project to assess, ideate and strategize regarding the institutional support and processes necessary to bolster support to initiate and sustain patient and community-engaged research partnerships. Formative mixed methods were employed to engage community and academic leaders to understand the history, perceptions, experiences and improvement recommendations.
Results: Early findings indicate opportunities for systemic change towards: 1) establishment of a community/patient research navigation system for partners entering into formal agreements with MSM; 2) centralized strategies to promote new and established programs to improve the capacities of community/patient partners to independently acquire, manage and sustain grants central to expanding their infrastructures and address prioritized health or healthcare initiatives; and 3) bolstering and amending systems to expedite grants and contracts policies given the well-recognized inequities in fiscal buoyancy between community-campus partners.
Conclusions: MSM has leveraged the E2PLUS partnership to strategically identify systems improvements necessary to ensure that community/patient centered research and partnerships, institution-wide, are amplified and sustained.
Advocacy for health and health education Diversity and culture Ethics, professional and legal requirements Other professions or practice related to public health Public health or related organizational policy, standards, or other guidelines Systems thinking models (conceptual and theoretical models), applications related to public health
Abstract
Developing the engage for equity institutional multi-stakeholder survey: Assessing academic institutional culture and climate for community based participatory research
APHA 2023 Annual Meeting and Expo
Public health or related research Systems thinking models (conceptual and theoretical models), applications related to public health