Abstract
Patient and family engagement in community health worker (CHW)-delivered diabetes education and support in a Latino/a health care center-based comparative effectiveness trial
APHA 2024 Annual Meeting and Expo
Objective: To examine how both FAM-ACT and comparison individual-focused CHW-delivered DSMES engaged AWD and their SPs, pre and during the pandemic, and participant factors associated with intervention engagement.
Methods: 222 dyads (AWD with HbA1c≥7.5% and an SP) were enrolled from 09/2019 to 12/2022, randomized (FAM-ACT or I-DSMES), and invited to attend six DSMES sessions over 6 months. AWD and SPs completed surveys at enrollment.
Results: AWD enrollment decreased slightly during the pandemic (77/409 [19%] pre, 145/894 [16%] during). 47% of enrolled SPs were the AWD’s spouse/partner, 26% adult child, 27% sibling/friend/other. AWD enrollees consistently were majority women (61% pre-pandemic, 62% during). Enrolled AWD preference for Spanish was higher during-pandemic (87%) than it was pre-pandemic (74%). On average, AWDs completed 3.8/6 and SP 2.6/6 DSMES sessions. 135/222 (61%) AWD met pre-determined criteria for ‘engagement’ (≥4/6 sessions). ‘Engaged’ AWDs were more likely female (64%, 58% non-engaged), live separately from their SP (40%, 29%), have A1c>9 (51%, 43%), and prioritize diabetes management (56%, 47%). In the FAM-ACT arm (N=112 dyads), engaged AWDs were more likely to have engaged SPs (50/64 [78%], 3/48 [6%]), SPs with pre-diabetes (32%, 6%) and SPs with higher ‘patient activation’ (61%, 33%). Overall, AWD ‘engaged’ during the pandemic (85/145) were less likely to have graduated high school (30/85 [35%], 27/50 [54%] pre-pandemic) and more likely to prefer Spanish to English (70/85 [82%], 36/50 [72%]).
Conclusions: CHW-delivered, culturally tailored DSMES programs successfully reached and engaged low-SES Latino/a AWD and their SPs, even after pandemic adaptations for online delivery. Engaged AWD had higher A1c, prioritized diabetes and had SPs with pre-diabetes and higher patient activation. Engaged AWD had lower education and preferred Spanish to English. Women AWD enrolled at the same rate pre and during the pandemic.
Implications: SP engagement and cultural and contextual tailoring of CHW-delivered DSMES may support the ability of low SES Latino/a AWD to enroll and engage in DSMES. Assessing motivation and ‘competing demands’ may identify AWD who are able to better engage in the short term.
Administer health education strategies, interventions and programs Assessment of individual and community needs for health education Chronic disease management and prevention Diversity and culture