Children’s Information Tennessee (CIT) is a multi-department initiative linking demographic and program participation information on children with special healthcare needs in a central database system managed by the Department of Health. The departments of Health, Children’s Services, Human Services, and Education and TennCare have entered into a formal agreement to provide information on their clients to the Health Department managed CIT system. CIT provides the information infrastructure for two initiatives: care coordination and research. Access to the system for care coordination is limited to “departmentally assigned contacts”--case managers and program administrators—and controlled by computer security measures and parental consent to release program participation information. Authorized individuals will use their favorite Web browser to create a secure link with system, find children and view care coordinators and program participation. Where parental consent to release information has not been recorded in the system, program participation information will not be displayed. However, users can send “blind” email to the care coordinators associated with a given child without seeing the care coordinator or program indicating that they have parental permission to coordinate care. Internal Health Department research projects will have access to “views” of the backend database. External research projects, approved by the Institutional Research Review Committee, will have access to datasets without person specific identifiers, drawn from one or more contributing departments. Since CIT has an unduplicated roster of children and program specific identifiers, it will serve as the hub for linking data from participating departments and creating research datasets.
Learning Objectives: Session participants will be able to
Keywords: Special Needs, Case Management
Presenting author's disclosure statement:
Organization/institution whose products or services will be discussed: Tennessee Department of Health
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.