National Hospice Organization data from 1995 indicates that only 4% of hospice clients were from Latino backgrounds. This project is designed to 1) provide an understanding of the attitudes of Latino families towards death and dying and hospice services; 2) develop an information and education program to increase hospice utilization among all Latino families and Latino individuals with developmental disabilities in particular. Because of diversity among Latino cultures, only Mexican and Mexican Americans have been targeted in this project. Pilot data has been obtained from focus groups with Mexican and Mexican American families in Arizona and Michigan. The focus groups were stratified by age cohorts (45-64, 65 and above), and length of residence in the U.S. (5 years or less, more than 5 years). Two focus groups were also held with providers including one with providers of services to individuals with developmental disabilities. The focus groups indicated a reluctance among Latino families to talk about death and dying, lack of knowledge about hospice services and concerns about the impact of hospice services on caregiving provided for families. Individuals with developmental disabilities have special needs in regard to how hospice services are delivered. Questions were also raised about the need for hospice staff to be Latino in background. The role of hospice services and providers in assisting Mexican and Mexican American families requires expanded discussion.
Learning Objectives: At the end of the session, the participant will be able to: 1. Identify attitudes of Latinos towards death and dying; 2. Identify factors that promote or inhibit the use of hospice services by Latinos
Keywords: Latinos, End-of-Life Care
Presenting author's disclosure statement:
Organization/institution whose products or services will be discussed: None
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.