4121.0: Tuesday, November 14, 2000: 12:30 PM-2:00 PM

Research on End-of-Life Care

Technological advancements in aggressive medical management at the end of life have led more Americans to fear how they die rather than death itself. There is widespread public dissatisfaction about management of dying patients by health care systems. Surveys indicate that most Americans would avoid aggressive treatment if the short-term outcome is likely to be death. Public and private organizations have partnered in efforts to encourage improvements in end-of-life care. The Institute of Medicine, in its comprehensive report Approaching Death: Improving Care at the End of Life, recommended that the nation's research establishment should define and implement priorities for strengthening the knowledge base for end-of-life care. The National Institutes of Health responded by issuing two requests for applications to improve care of the dying, Management of Symptoms at the End of Life (PA-98-019, Dec., 1997) and Research on Care at the End of Life (NR-99-004, Jan., 1999). To improve care of the dying, research must include the experience of families, clinicians, and health care systems as well as the experience of dying patients. Health care policy, culture, and other contextual factors that bear on end-of-life care also are important considerations. This Symposium features papers that address issues of improving end- of-life care in America. The first paper reviews the state of the science specifically on limitation of treatments in intensive care units. The four papers that follow each report research findings on aspects of end-of-life care in hospital settings
See individual abstracts for presenting author's disclosure statement.
Learning Objectives: Refer to the individual abstracts for learning objectives
Presider(s):Judith Gedney Baggs, PhD,, RN
12:30 PMFamily Decision Making to Withdraw Life-Sustaining Treatments
Virginia Tilden, RN, DNSc, FAAN, Susan Tolle, MD, FACP, Christine Nelson, RN, MS, Jonathan Fields, MS
12:42 PMFunctional decline predicts site of death
Sherry Weitzen, MS, MHA, Joan M. Teno, MD, MS, Mary Fennell, PhD, Vincent Mor, PhD
12:54 PMICU Family Experiences with Communication about End-of-Life Care
Karin T. Kirchhoff, PhD, RN, FAAN, Vicki Spuhler, RN, MN, Lee Walker, PhD, RN, Ann Hutton, PhD, RN, Beth Cole, PHD, RN
1:06 PMHospice's influence on end-of- life pain management in nursing homes
Susan C. Miller, PhD, MBA, Pedro Gozalo, PhD, Vincent Mor, PhD
1:18 PMPlanning end-of-life care for patients with dementia: Roles of families and health professionals
Charles E. Gessert, MD, MPH, Mercedes Bern-Klug, MSW, Sarah Forbes, RN, PhD
1:30 PMProvider Comfort and Experience: Two Conditions for End-of-Life Care Planning
Sally A. Norton, PhD, RN
1:42 PMState of the Science on Limitation of Treatment Decisions in Intensive Care Units
Judith Gedney Baggs, PhD, RN
Sponsor:Gerontological Health
Cosponsors:Epidemiology; Public Health Nursing

The 128th Annual Meeting of APHA