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Promoting a Medical Home for families: Developing health education tools for parents of children with special health care needs

Rebecca Feinstein Winitzer, MS, MSW, Division for Special Health Needs, Bureau of Family and Community Health, Massachusetts Department of Public Health, 250 Washington Street, Fourth Floor, Boston, MA 02108-4619, 617-624-5970, rebecca.winitzer@state.ma.us

The American Academy of Pediatrics, the American Academy of Family Physicians, and the national Maternal and Child Health Bureau are promoting the slogan “Every Child Deserves a Medical Home.” What is a Medical Home? How do clinicians, public health practitioners, and health plans put Medical Home into action for children with special health care needs?

One way to implement Medical Home is to develop specialized health education materials for parents that:

* Help organize health records and information in order to optimize contact with health providers and health plans;

* Provide resources and specialized information about caring for a child with special health care needs; and

* Improve communications among families, health providers, and health plans.

This session will discuss the process of developing a resource manual for parents of children with special health needs. The presenter will propose an approach to building collaboration with health insurance plans, health care providers, family support agencies, and other State and non-profit agencies to support the resource manual. Highlights from the evaluation of the Massachusetts resource manual, Directions: Resources for Your Child’s Care, will be shared.

Learning Objectives: At the conclusion of the session, a participant will be able to

Keywords: Children With Special Needs, Disability

Related Web page: www.state.ma.us/dph/fch/dshn.htm

Presenting author's disclosure statement:
Organization/institution whose products or services will be discussed: Massachusetts Department of Public Health
I have a significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.
Relationship: Health Education Consultant

Systems of Care for Children with Special Health Care Needs: Ensuring Access and Quality

The 132nd Annual Meeting (November 6-10, 2004) of APHA