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Session: Systems of Care for Children with Special Health Care Needs: Ensuring Access and Quality
3278.0: Monday, November 8, 2004: 2:30 PM-4:00 PM
Oral
Systems of Care for Children with Special Health Care Needs: Ensuring Access and Quality
Healthy People 2010 calls for increasing the proportion of States that have service systems for children with special health care needs (CSHCN); and the federal Maternal and Child Health Bureau is supporting development of such systems through the Title V MCH Block Grant Program and discretionary grants. MCHB efforts focus on improving access to a medical home; meaningful family participation in medical decision making and policy development; making systems easy to use; increasing availability of public and private health insurance, and facilitating transition of youth to adulthood. This session focuses on the strategies and mechanisms for developing, sustaining, and evaluating the medical home; and for supporting families in their critical roles as care-giver and systems change agent. Specific issues to be addressed include key components of the medical home; impact on families of caring for CSHCN; barriers faces by CSHCN and their families in underserved areas; community-based perspective on collaborative development medical homes; role of medical homes within the health care safety net; role of providers in partnering with and supporting families with CSHCN; and methods for monitoring and measuring the impact of the medical home on CSHCN and their families.
Learning Objectives: 1. Identify components of a medical home 2. Describe methods for supporting family partication in the medical home 3. Identify methods/models for providing a medical home to CSHCN and their families 4. Compare methods to measure medical home
Organizer(s):John Reiss, PhD
Deborah Allen, ScD
Moderator(s):John Reiss, PhD
2:30 PMIntroductory Remarks
2:35 PMSystemic impact of CSHCN on their families
Brenda T. Fenton, PhD, Denise Elizabeth Stevens, PhD, Martha Okafor, PHC, MA, CSM, MPA
2:52 PMMedical home in the safety net: Building infrastructure for CSHCN in community health centers
Lise M. Youngblade, PhD
3:09 PMDeveloping medical homes in your community: The public health professional's role
Bob Moore, MA
3:26 PMPromoting a Medical Home for families: Developing health education tools for parents of children with special health care needs
Rebecca Feinstein Winitzer, MS, MSW
3:43 PMAssociation of medical home and disease management outcomes in chronic childhood asthma
Megan E. Sety, MSW, James M Krieger, MD MPH, Michelle Bell, MSW, PhD, Gail M. Kieckhefer, ARNP, PhD
See individual abstracts for presenting author's disclosure statement and author's information.
Organized by:Maternal and Child Health
Endorsed by:Black Caucus of Health Workers; Community Health Planning and Policy Development; Health Administration; Social Work
CE Credits:CME, Health Education (CHES), Nursing

The 132nd Annual Meeting (November 6-10, 2004) of APHA