Back to Annual Meeting Page		American Public Health Association 133rd Annual Meeting & Exposition December 10-14, 2005 Philadelphia, PA

Abstract #106053

Linda Burhansstipanov, MPH, DrPH, Executive Director, Native American Cancer Research (NACR), 3022 S. Nova Rd, Pine, CO 80470, Linda U. Krebs, School of Nursing, Campus Box F541, P.O. Box 6508, Aurora, CO 80045, Eduard Gamito, UCHSC, 4200 E. 9th Ave., Campus Box C315, Denver, CO 80262, Michael Douma, IDEA Corporation, 616 Great Falls Road, Rockville, MD 20850, 202-448-9928, info@michaeldouma.com, Mark Dignan, PhD, MPH, Prevention Research Center, University of Kentucky, 2365 Harrodsburg Rd., Suite B100, Lexington, KY 40504, and Judy Hariton, Project Coordinator, Native American Cancer Research, 3022 South Nova Road, Pine, CO 80470-7830.

"Native American Cancer Education For Survivors" (NACES) is a study supported by the Susan G. Komen Foundation (#POP0202135) to develop the initial four interactive, personalized education modules and subsequently by the National Cancer Institute (R25 CA101938) to develop eight more modules. This presentation will demonstrate the technology that allows for the Native cancer patients personal information to help identify high priority topics for that individual patient. Findings from the intake survey will be summarized and used to show how these data have influenced the development of additional modules. The web-based education program includes multiple innovative functions; including, but not limited to: the tailoring of content based on the survivors responses to intake surveys; survivors word choice preferences (e.g., “American Indian”, “Native American”, “Aboriginal”), linking among all available quality of life education topics, the encrypted code names to protect survivors' identity, the cultural relevance of content, the organization of the modules within a QOL Decision Tree (based on the layout of the modules allowing the patient to decide which topics to look at) and the use of Native survivors for streamlined video vignettes. The education resources are accessible through the assistance of a trained Native Patient Advocate or may be accessed directly from the website. Although anyone is welcome to access the QOL information and resources, only the data from the Native cancer survivors are analyzed for increases in QOL and knowledge, click-streams to track which modules are accessed and in which order and so on.

Learning Objectives:

• The APHA session participant will be able to identify at least four unique components of the NACES Study.
• The APHA session participant will be able to identify how cancer survivors and loved ones may access the web-based education program.

Keywords: Native Americans, Internet Tools

Related Web page: www.NatAmCancer.org

Presenting author's disclosure statement:

I wish to disclose that I have NO financial interests or other relationship with the manufactures of commercial products, suppliers of commercial services or commercial supporters.