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133rd Annual Meeting & Exposition December 10-14, 2005 Philadelphia, PA |
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Jeannine Coreil, PhD1, Michael Lauzardo, MD2, Kelly Simpson, MA3, and Elizabeth Hamilton, BS3. (1) College of Public Health, University of South Florida, 13201 Bruce B. Downs Blvd., MDC 56, Tampa, FL 33612, 813/974-6698, JCOREIL@smtp.hsc.usf.edu, (2) College of Medicine, University of Florida, 224 S.E. 24th Street, Gainesville, FL 32641, (3) School of Public Health, University of South Florida, 13201 Bruce B. Downs Blvd., Tampa, FL 33612
This paper reports findings from the ethnographic component of a multi-phase study of tuberculosis-related stigma in Haitian populations. Using the methodology of cultural epidemiology, the study makes comparisons across three social groups (patients, health care providers and community residents) located in two sites, Leogane Haiti and Broward County, Florida. Ethnographic data were collected during 2003-04 in both sites on the cultural context of tuberculosis and other contagious diseases, as well as local explanatory models of the disease. Methods included participant observation in clinics and the community, and in-depth interviews and focus group discussions with patients, providers and residents in Florida and Haiti. The ethnographic sample included a total of 40 hours of observation, 160 interviews and 12 focus groups. Textual data were analyzed using MAX QDA software. Key findings are presented in this paper.
Dimensions of stigma related to tuberculosis were similar across the two sites, however in Florida, greater emphasis was given to political aspects of immigration and minority group status. In Haiti, disease stigma was more closely associated with attributions of poverty, poor living conditions and malnutrition, although these aspects were also noted in Broward County. Differences were found in explanatory models of active compared to latent tuberculosis, and distinctive features characterized the social groups sampled. These components were used to develop a structured instrument for use in subsequent phases of the research. Other applications of the findings for public health practice are discussed.
Learning Objectives:
Keywords: Culture, Tuberculosis
Presenting author's disclosure statement:
I wish to disclose that I have NO financial interests or other relationship with the manufactures of commercial products, suppliers of commercial services or commercial supporters.
The 133rd Annual Meeting & Exposition (December 10-14, 2005) of APHA