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American Public Health Association
133rd Annual Meeting & Exposition
December 10-14, 2005
Philadelphia, PA
APHA 2005
 
Session: Systems of Care for Children and Youth with Special Health Care Needs
3295.0: Monday, December 12, 2005: 2:30 PM-4:00 PM
Oral
Systems of Care for Children and Youth with Special Health Care Needs
The Healthy People Goal for children with special health care needs (16:23) is to increase the proportion of States and territories that have service systems for CSHCN. in order to meet this goals, states and their communities must develop and maintain a family-centered, culturally competent system of care that involves:1) family/professional partnership; 2) comprehensive health care through a medical home; 3) improved access to adequate health insurance/ financing; 4) early and continuous screening; 5) organization of community services for easy use by families; and 6) transition of youth to adult health care, work, and independence. This purpose of this presentation is to inform partcipants about the strategies and mechanisms states and communities have used to implement systems and measure the impact of selected forces and factors on the provision of care. More specifically, papers will be presented on a)one states strategies for building partnerships with diverse stakeholders; b) a community's efforts to identify and address family and provider perceptions that affect family-centered care; c) the impacts that Medicaid/SCHIP expansions have had in terms of measurable clinical and economic benefits for CSHCN; d) a states use of the rapid-cycle change approach as a mechanism for promoting continuous quality improvement for CSHCN within the Medical home frameowrk; and e) a states efforts to identify state-level social, political and economic indicators that have an impact on funding for CSHCN and understand the relationship among these factors and state expenditres as they affect the well-being of CSHCN.
Learning Objectives: Participants will be able to: Discuss strategies for building partnerships with diverse stakeholders Describe family and provider perceptions that affect family-centered care of CSHCN Identify the impacts that Medicaid/SCHIP expansions has had in terms of measurable clinical and economic benefits for children with special health care needs. Assess and discuss the benefits and challenges of implementing a medical home. Identify state-level social, political and economic indicators that have an impact on funding for CSHCN and discuss the relationship among these factors and state expenditres as then affect the well-being of CSHCN
Organizer(s):John Reiss, PhD
Deborah Allen, ScD
2:30 PMIntroductory Remarks
2:35 PMImplementation of medical homes statewide: Meeting multiple challenges of systemic change  [ Recorded presentation ]
Denise Elizabeth Stevens, PhD, Brenda T. Fenton, PhD, Martha Okafor, PHC, MA, CSM, MPA
2:50 PMGood moms and bad moms: Perceptions as obstacles to family-centered care for children with special needs  [ Recorded presentation ]
Nancy L. Winterbauer, PhD, Susan L. Collini, MPH, Barbara S. Barry, MPH, Kristi L. Stowers, BSH, Suzanne P. Murphy, PhD, RN, David L. Wood, MD, MPH
3:05 PMPractice-level implications of implementing a medical home  [ Recorded presentation ]
Natoshia M. Askelson, MPH, Keri L. N. Mercer, MPH, CHES, Anne Wallis, PhD, Jeffrey G. Lobas, MD, Andrew J. Penziner, MD, MS, Dennis Affholter, MA
3:20 PMState capacity and the well-being of children and youth with special health care needs
Lewis H. Margolis, MD, MPH, Michelle Mayer, PhD, MPH, RN, Anita M. Farel, DrPH, Kathryn A. Clark, PhD
3:35 PMDiscussion
See individual abstracts for presenting author's disclosure statement and author's information.
Organized by:Maternal and Child Health
Endorsed by:APHA-Committee on Women's Rights; Community Health Planning and Policy Development; Epidemiology; Public Health Nursing; Socialist Caucus; Women's Caucus
CE Credits:CME, Health Education (CHES), Nursing

The 133rd Annual Meeting & Exposition (December 10-14, 2005) of APHA