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American Public Health Association
133rd Annual Meeting & Exposition
December 10-14, 2005
Philadelphia, PA
APHA 2005
Session: Developing Policy for the Delivery of Genetic Services
4041.0: Tuesday, December 13, 2005: 8:30 AM-10:00 AM
Developing Policy for the Delivery of Genetic Services
This session will provide an understanding of the public health implications of genetics and bioethics concerns regarding expanded newborn screening, genetics services and testing, and reproductive genetics policy development. The participants will gain a greater understanding of the community perspectives and advocacy issues associated with each of these components of the delivery of genetic services.
Learning Objectives: 4. Session Objectives: at the end of the session participants will have: a. An understanding of the public health implications of genetics and bioethics issues b. An understanding of the national policy issues associated with expanded newborn screening and reproductive genetics. c. An understanding of the roles of key stakeholders in genetic testing, service and policy development d. A recognition of key issues related to the practices of policy development
Organizer(s):Michele Lloyd-Puryear, MD, PhD
Penny Kyler
Moderator(s):Michele Lloyd-Puryear, MD, PhD
8:30 AMIntroduction  [ Recorded presentation ]
8:40 AMNewborn Screening in States Challenges to Expanded Screening
jelili Ojodu, MPH
9:10 AMExpanding newborn screening: From advocacy to program implementation  [ Recorded presentation ]
Scott D. Berns, MD, MPH, Jennifir L. Birtwhistle, MA, Sabine Jean-Walker, MA, Leslie Kowalewski, Keith Nash, BA, Elise Linden Antrobus, MSW, Mary Ann Henson, MSN, Marina L. Weiss, PhD
9:30 AMReproductive genetic testing: Public opinion and options for policymakers
Susannah A. Baruch, JD, Gail Javitt, JD, MPH, Joan Scott, MS, CGC, Kathy Hudson, PhD
See individual abstracts for presenting author's disclosure statement and author's information.
Organized by:Maternal and Child Health
Endorsed by:APHA-Committee on Women's Rights; Public Health Nursing; Socialist Caucus; Women's Caucus
CE Credits:CME, Health Education (CHES), Nursing

The 133rd Annual Meeting & Exposition (December 10-14, 2005) of APHA