150423 Breast Cancer and Breast Health Education and Research among Deaf/HH Women

Wednesday, November 7, 2007: 8:30 AM

Barbara A. Berman, PhD , A2-125 Chs, UCLA-DCPCR, Los Angeles, CA
Heidi B. Kleiger, BS , Greater Los Angeles Agency on Deafness (GLAD), Los Angeles, CA
Angela M. Jo, MD , A2-125 Chs, UCLA-DCPCR, Los Angeles, CA
Leanne Streja, MS , A2-125 CHS, UCLA School of Public Health, Los Angeles, CA
Roshan Bastani, PhD , Department of Health Services, University of California, Los Angeles, School of Public Health, Los Angeles, CA
Philip Zazove, MD , Univeristy of Michigan Health System, Department of Family Medicine, Ann Arbor, MI
Alicia Wolfson, BA , Greater Los Angeles Agency on Deafness (GLAD), Los Angeles, CA
Responding to the unmet needs of Deaf and Hard-of-Hearing (Deaf/HH) women, we report here on a first ever program of research targeting development and testing of a tailored, comprehensive breast health/breast cancer educational program, funded by the California Breast Cancer Research Program and the Susan G. Komen Foundation. We describe the steps taken through a Deaf Community-academic research partnership to craft a program that features linguistically and socio-culturally appropriate small group workshop session, videos, and written materials. We explain the program content which spans the elements of the breast cancer control continuum from early detection through survivorship; focuses on economic, linguistic and socio-cultural barriers to adequate breast health information and services in clinical and other settings and strategies to improve access and address these issues; and which explores ways in which to increase participation by Deaf/HH women in the breast cancer advocacy movement. Finally, we explain our two-phase research approach, including a demonstration project and a Randomized Controlled Trial (RCT) targeting breast cancer related knowledge, attitudes and practices. We describe the process by which our Deaf-community participatory research is conducted; participant recruitment, participation and follow-up achieved, with special emphasis on inclusion of Deaf/HH breast cancer survivors and women with lower levels of education; and the challenges met in our efforts to address the health disparities of this unique underserved and understudied population.

Learning Objectives:
1. Learn about the barriers to breast health and breast cancer information, services, and resources facing Deaf/HH women. 2. Learn about breast health and breast cancer research to address unmet needs among Deaf/HH women. 3. Learn about challenges in conducting Deaf community - academic participatory research and strategies for achieving mutual research and programmatic goals to serve Deaf/HH persons.

Keywords: Deaf, Breast Cancer

Presenting author's disclosure statement:

Any relevant financial relationships? No
Any institutionally-contracted trials related to this submission?

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.