Provider perceptions of the challenges faced by youth newly diagnosed with HIV

BACKGROUND: Adolescents with HIV confront many challenges as they struggle with normal adolescent developmental issues while living with a highly stigmatized illness. Healthcare providers have a central role in aiding youth's psychosocial adjustment during the first year following diagnosis. It is important to explore the perceptions of healthcare providers who work with HIV-infected youth regarding the challenges these youth face. METHODS: Forty-three semi-structured interviews were conducted with healthcare providers from 14 clinics in the US that serve HIV-infected youth. Providers were asked to discuss challenges that they perceive HIV-infected youth face during the first year after diagnosis. Notes taken during interviews were analyzed and common themes were identified. Research team members met to examine emerging themes and categorize the most commonly reported challenges. RESULTS: Providers identified several key challenges for youth. In particular, providers described the challenges of receiving an HIV diagnosis for youth with pre-existing mental health conditions, particularly for those who may be dually diagnosed with a substance abuse disorder. Providers also reported that youths' initial disclosure of their HIV status to significant others and the stress of the disclosure process presented a critical challenge for these youth. Providers discussed the important role of the healthcare team and offered suggestions for improving healthcare assistance during this critical period. CONCLUSIONS: There are many challenges facing youth who receive an HIV diagnosis. The needs of these youth as perceived by their providers are often not being met, particularly needs surrounding mental health. Implications for research and practice will be addressed.