159490 Latin@ Consumer Genetics Education Network: Meeting the need for a culturally and linguistically appropriate genetics education program for Latinos in NYC

Tuesday, November 6, 2007: 9:00 AM

Rosita Romero, MSW , Executive Director, DWDC, New York, NY
Andel Nicasio, MSEd , Latin@ Consumer Genetics Education Network, Dominican Women's Development Center, New York City, NY
Jesus Sanchez, MS , Local Evaluator, DWDC, New York City, NY
Alejandro Iglesias, MD , Division of Medical Genetics Department of Pediatrics, Beth Israel Medical Center, New York, NY
Luis Barrios, PhD , Latin@ CGEN-Project Coordinator, DWDC, New York City, NY
Vanna Nicasio, Trained MD , Latin@ Consumer Genetics Education Network, Dominican Women's Development Center, New York, NY
Mario Cesar Peralta, Trained MD , Latin@ Consumer Genetics Education Network, Dominican Women's Development Center, Bronx, NY
Luis Lasose, Trained MD , Latin@ Consumer Genetics Education Network, Dominican Women's Development Center, Queens, NY
In 2000, the Latin@ Consumer Genetics Education Network (Latin@ CGEN) of the Dominican Women's Development Center (DWDC) initiated a culturally and linguistically appropriate genetics educational campaign for the Latino/a population in Washington Heights/Inwood, NY. Genetics educational materials were developed on basic genetics information and issues of high importance to the Latino/a community, utilizing community based participatory strategies. Community Health Workers (Promotoras) and a local community advisory board were instrumental in developing a Promotoras genetics education training curriculum, bilingual educational DVD and DVD worksheet, and multimedia public announcements (PSAs). Promotoras conducted genetics education workshops and disseminated complementary educational materials to residents and constituencies of community based organizations. Community impact and involvement in creating, implementing and disseminating these educational materials will be shared. The Latin@ CGEN is composed of a group of community members and representatives of community and faith based organizations. It is one of the four programs of the Consumer Genetics Education Network (CGEN) project funded by March of Dimes and Health Resources Services Administration to help increase genetic literacy among Asian Americans, Native Americans, African Americans and Latino/a communities.

Learning Objectives:
1. Articulate the role of community members, community leaders and health advocates in designing genetics educational materials for the Latino/a community at large. 2. List best practices in the development and implementation of the Latin@ CGEN genetics campaign and evaluation. 3. Identify effective strategies to empower community residents with information about genetics and health risk, enabling them to identify their own exposure to potential genetic risks so they can make more informed decisions about their health.

Keywords: Genetics, Latinos

Presenting author's disclosure statement:

Any relevant financial relationships? No
Any institutionally-contracted trials related to this submission?

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.