4015.0 Utilizing Principles of Community-Based, Participatory Collaboration to Create Culturally Competent Genetics Education Resources for Diverse, Underserved Populations

Tuesday, November 6, 2007: 8:30 AM
In 2005, the March of Dimes (MOD) received funding from the Genetics Services Branch of HRSA for a 5-year effort to improve genetic literacy in underserved, underrepresented populations and increase access to culturally and linguistically appropriate genetics education programs and services. MOD is collaborating with diverse community groups and organizations collectively known as the Consumer Genetics Education Network. The National Human Genome Center at Howard University (DC), Charles B. Wang Community Health Center (NY), Dominican Women’s Development Center (NY), and the Genetic Science Learning Center at the University of Utah with the Utah Department of Health Chronic Disease Genomics Program (UT) have created programs and materials to address the genetics information and resource needs of the African American, Asian American, Latino/Hispanic and Native American populations. Each has implemented community-based participatory strategies and engaged key stakeholders in a culturally sensitive manner to facilitate consumers in making informed healthcare decisions, increase awareness of family health history, increase consultation with healthcare providers and use of genetic services among high risk populations, and promote lifestyle changes that reduce genetic based health risks. MOD has collaborated with the Midwest Latino Health Research Center at the University of Illinois-Chicago to examine genetics education processes and identify best practices to develop standardized genetics education models for dissemination. In this panel we will discuss culturally/linguistically appropriate methods and materials, and address ethical, legal and social implications for creating and implementing community-based genetics education programs for underserved populations.
Session Objectives: At the end of the session,participants will beter: 1. Understand the need for culturally and linguistically appropriate genetics education materials for the African American, Asian American, Hispanic/Latino and Native American communities 2. Be able to describe benefits and challenges of using a community-based participatory approach to engage traditionally underserved, minority populations in the development of genetics education information and resources 3. Identify criteria for assessing cultural competence in the planning, development, implementation and evaluation of health promotion programs

8:30 AM
Creative approaches to developing and disseminating culturally appropriate genetics health education information to African American communities
Valerie R. Hill, MPH, CHES, Charles P. Mouton, MD, MS, Charmaine D. M. Royal, PhD and Grace-Ann Fasaye, ScM
9:00 AM
Latin@ Consumer Genetics Education Network: Meeting the need for a culturally and linguistically appropriate genetics education program for Latinos in NYC
Rosita Romero, MSW, Andel Nicasio, MSEd, Jesus Sanchez, MS, Alejandro Iglesias, MD, Luis Barrios, PhD, Vanna Nicasio, Trained MD, Mario Cesar Peralta, Trained MD and Luis Lasose, Trained MD
9:15 AM
Family genetics education through school and community partnerships
Louisa A. Stark, PhD, Rebecca Giles, MPH, CHES, Jenny Johnson, CHES and Stacy Eddings, PhD
9:30 AM
Assessing cultural competence and participatory approaches in the planning, development, implementation and evaluation of Consumer Genetics Education Network (CGEN) projects
Aida L. Giachello, PhD, Robin Bates, PhD, Johnnie Daniel, PhD, Stacy Eddings, PhD, Jesus Sanchez, MS and Jo-Ann Manswell-Butty, PhD

See individual abstracts for presenting author's disclosure statement and author's information.

Organized by: Community Health Planning and Policy Development
Endorsed by: Women's Caucus, Socialist Caucus, Latino Caucus, Community Health Workers SPIG, Community-Based Public Health Caucus, Asian Pacific Islander Caucus of APHA

CE Credits: CME, Health Education (CHES), Nursing