182234 Hearing the consumer voice in managed long-term care programs in Wisconsin

Tuesday, October 28, 2008

Sarita L. Karon, PhD , Center for Health Systems Research and Analysis, University of Wisconsin - Madison, Madison, WI
Barbara Bowers, PhD , School of Nursing, University of Wisconsin-Madison, Madison, WI
Brenda Ryther, RN, MS , Center for Health Systems Research and Analysis, University of Wisconsin - Madison, Madison, WI
Kim Nolet, BS , School of Nursing, University of Wisconsin-Madison, Madison, WI
Donna Kopp, RN, MS , Center for Health Systems Research and Analysis, University of Wisconsin - Madison, Madison, WI
Kay Hutchison, MS , Center for Health Systems Research and Analysis, University of Wisconsin - Madison, Madison, WI
The PEONIES approach is a unique method of assessing the quality of community-based long-term services and supports, which is now being development and implemented in Wisconsin's Medicaid managed long-term care programs. It is based on consumer-specific outcomes in 12 quality of life domains. This unique approach gives control to each individual to define their desired outcomes (dreams, wishes, goals) in each domain. Quality is measured as the extent to which desired outcomes are achieved and are supported by managed long-term care programs. Quality also includes supporting individuals to recognize options and possibilities beyond their current situations.

Historically, individuals have received long-term care supports and services using a formulaic approach to hours and types of services based on an assessment of functional abilities and health. The PEONIES approach uses a semi-structured interview and reflective listening techniques to elicit and reflect back the outcomes identified by the individuals. Supports and services are identified to support the achievement of these outcomes.

In this presentation, we will share findings from PEONIES interviews with 144 individuals, with particular attention given to (1) the range of outcomes identified; (2) the percent of desired outcomes that are achieved versus in progress; (3) the percent of outcomes that are fully supported; and (4) the ways these findings differ by population group (adults with physical disabilities, adults with developmental disabilities, and elders). We also will discuss the ways that individuals responded to the interviews, and implications for how this approach can change the nature of long-term care programs.

Learning Objectives:
1. Understand how a person-centered, outcomes-driven approach to care management is unique 2. Appreciate the differences in experiences within and across members of different disability communities 3. Recognize the ways that a truly person-centered, outcomes-driven approach can change the nature of the service planning and delivery system

Keywords: Consumer Direction, Quality of Life

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am the Principal Investigator on this project.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.