199702 Chronic Hepatitis B in Chinese Immigrants: Assessing Barriers to Health Care Access

Monday, November 9, 2009

C. A. Cohen, MPH , Department of Public Health Research, Hepatitis B Foundation, Doylestown, PA
Gang Chen, PhD , Department of Public Health Research, Hepatitis B Foundation, Doylestown, PA
Joan Block, RN, BSN , Hepatitis B Foundation, Doylestown, PA
Philip Siu, MD , Chinatown Medical Services, Philadelphia, PA
Leilei Duan, MSW , Chinese Health Information Center of Thomas Jefferson University, Philadelphia, PA
Alison A. Evans, ScD , School of Public Health, Drexel University, Philadelphia, PA
W.T. London, MD , Department of Public Health Research, Hepatitis B Foundation, Doylestown, PA
Chronic hepatitis B (HBV) and liver cancer are the largest health disparities for APIs in the U.S. Community screening programs improve awareness of infection; however, it is unknown whether API individuals screened at community events can access follow-up care. Without medical management, up to 25% will die prematurely from HBV-related disease. Preliminary results of a retrospective study of Chinese foreign-born HBV-infected individuals in Philadelphia offer useful information about the gap between diagnosis and entry into care. Among infected individuals, 64% saw a doctor since they were screened (12-48 months previously). Of these, 80% had health insurance, 69% found a doctor who spoke their language, 60% saw their HBV doctor twice a year, and 25% received treatment. Of those who had not seen a doctor, reported barriers included having no health insurance (67%), not realizing that having HBV would cause health problems (77%), not being told to see a doctor (67%), and not finding a doctor who spoke their language (45%). Of all participants, 83% reported needing information about HBV, 71% wanted to be more informed of the negative outcomes of HBV (though 83% were aware that HBV could cause liver cancer and death), and 42% felt they needed more adequate health insurance coverage. These early results indicate that HBV knowledge, health insurance, and language are barriers to care. Community screening programs should provide comprehensive HBV information, and follow-up to those who test positive for HBV, to help them access care. A case-management approach to assisting infected individuals will be discussed.

Learning Objectives:
1. Discuss the magnitude of the health disparities of chronic hepatitis B and liver cancer in Asian and Pacific Islander populations in the U.S. 2. Identify at least 5 specific barriers faced by foreign-born Chinese individuals infected with chronic hepatitis B, in accessing appropriate, ongoing medical care for their infection. 3. Describe how organizations that perform community-based HBV screenings can incorporate quality health information, as well as assist those who test positive with finding appropriate medical care.

Keywords: Asian and Pacific Islander, Hepatitis B

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I received my MPH in Community Health Education in 2001. Since 2000, I have been conducting research studies, outreach and education in hepatitis B and liver cancer. I have had almost 10 years experience in designing and implement hepatitis B studies. Recent publications include: Cohen, C., Evans, A.A., London, W.T., Block, J., Conti, M., & Block, T. Underestimation of Chronic Hepatitis B in the U.S. Submitted to the Journal of Viral Hepatitis, March 2007. Amy B. Jessop, PhD, MPH, Chari Cohen, MPH, Monika Burke, RN, Molli Conti, Martin Black, MD. Hepatitis Support Groups: Meeting the Information and Support Needs of Hepatitis Patients. Gastroenterology Nursing. (27(4):163-169). Chari A. Cohen, MPH, Amy Jessop, PhD, MPH, Molli Conti, & Joan Block, RN. (November 2002). Public use of an Internet-based support group for chronic hepatitis B carriers: Answering some basic questions. Journal of the American Public Health Association. Presentation abstract for the 2002 Annual Meeting. Amy B. Jessop, PhD, MPH, Monika Burke, RN, Chari A. Cohen, MPH, Laura Taylor, MS. (2002). Meeting the information and emotional needs of hepatitis support group members. Journal of the American Public Health Association. Presentation abstract for the 2002 Annual Meeting. Chari Cohen, MPH, Molli Conti*, and Joan M. Block, RN, BSN. (2001). Using Electronic Media For Global HBV Outreach: A Model For Success. Presentation at the CDC Hepatitis Coordinator’s Conference. Cohen, C. (May 2001). Assessing an Internet-based support group for chronic hepatitis B carriers: Exchanging information and support online. Presented at Pennsylvania Public Health Association Regional meeting.
Any relevant financial relationships? Yes

Name of Organization Clinical/Research Area Type of relationship
Gilead Pharmaceuticals hepatitis B treatment Advisory Committee/Board and Stock Ownership

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.