213240 Living with disability: Alternative strategy for an old mother to be led by her daughter with cerebral palsy

Sunday, November 8, 2009

Toru Furui, PhD, PT , Department of Physical Therapy, Osaka Kawasaki Rehabilitation University, City of Kaizuka, Osaka prf, Japan
Masayo Furui , Society for health and life of people with cerebral palsy, Osaka, Japan
Ikuko Mori, MBA , Society for health and life of people with cerebral palsy, Osaka, Japan
Introduction: Japanese suicide incidence has been exceeded over 30,000 cases in past seven years after 2002, and increasing suicide aged older than 65. Health conditions and stigmatized disabilities are often pointed out the reason. Study question: How can people with CP contribute for elderly people to overcome the stigma for disablement and illness?

Description: In the early 1950's, being diagnosed with cerebral palsy (CP) was being a fatal illness. On the train home after being told that a baby has CP, the mother was about to jump from the running train with the baby daughter in her arms. More than a half a century later, the mother suffers from impairments from a traumatic brain injury caused by a car accident, also has depression, tumors, and dementia. During that half a century, the daughter, the one people thought “should not exist”, lived independently in the community, acquiring the social skills and knowledge, utilizing the technologies and services available and getting the care she need. This lifelong achievement is what the mother ultimately relied on. The mother left her home and is living with the daughter after she needs a long-term care.

Discussion: Most elderly people who need care never know how to live with their disabilities. Worse still, they were perfectly “normal” all their life, and now suddenly they feel “abnormal”. This causes embarrassment, confusion, and panic. This is where people with CP can help. People with CP are like “experts” at being lifelong disabled.

Learning Objectives:
1.Demonstrate incleased eldarly suicides in Japan. 2.Descrive a life story of a mother who once was about to jump from the running train with her baby daughter with cerebrel palsy in her arms. 3.Explain her health outcome after over 50 years interpreting her story and her doughters life. 4. Explrore a key for good quality of life among aging population in a society historically with strong stigma for illness and disability.

Keywords: Disability, Quality of Life

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: From 1990 to 2001, I had served as a community rehabilitation officer (physical therapist) at a local government, Kumano town office. I got my PhD from Kobe University Graduate School of Medicine in 2004, and served as post-doctoral research associate at Department of Physical Medicine and Rehabilitation at University of Pittsburgh PA, mentored by Dr. Michel L Bonninger for 2 years.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.