3030.0 Ethical Issues in Genomics and Social Justice

Monday, November 8, 2010: 8:30 AM - 10:00 AM
As the field of genomics rapidly advances, careful consideration of the ethical and social justice implications becomes increasingly important. This session will focus on addressing this need through examination of topics related to informed consent and to genetic difference. In one presentation, studies requesting the use of biological specimens for genetic research, all approved by a single IRB, were examined to identify key differences that could influence informed consent. The ethical challenges involved in obtaining informed consent for genetic studies from critically ill patients will also be highlighted, stressing the importance of continued education of the general population about genomics. Another presentation highlights the impact that genetic information can have by exploring the role that both perceived and observable genetic differences can play in influencing college students’ marital intentions. The findings caution us to guard against the possibility of discrimination. Finally, the necessity and importance of use of ancestry informative markers to measure population stratification is questioned given the potential for misuse and misunderstanding. In summary, this session will guide attendees in an examination of a variety of ethical and social justice concerns within the context of genomics.
Session Objectives: 1.Describe the ethical concerns created by inconsistent standards for informed consent for storage and future use of biological specimens for genetic research. 2.Identify two challenges surrounding situations where a family member is approached for consent for genetic studies on a critically ill relative. 3.Discuss the impact of genetic differences and stigma on sexual and marital intentions for college students.

Consent for genetic research at CDC: Storage and future use of specimens
Sara Giordano, PhD, Jessica Rowell, MPH, Nicole F. Dowling, PhD, Marta Gwinn, MD, MPH and Drue Barrett, PhD
Ethical Challenges to Informed Consent for Genetic Research during Critical Illness
Ellen Iverson, MPH, Erica Shehane, MPH, MSW, Aaron Celious, PhD, Carie Kennedy, RN, Victoria Warren, RN, Alexander Eastman, MD, MPH and Bradley Freeman, MD
Exploring the relationship between genetic stigma and sexual decision-making among college students
Heather Honoré Goltz, PhD, LMSW, Sandra Acosta, PhD(c), Marsha Honoré-Jones, BS, Lei-Shih Chen, PhD, PT, CHES, David Latini, PhD and Patricia Goodson, PhD

See individual abstracts for presenting author's disclosure statement and author's information.

Organized by: Genomics Forum
Endorsed by: Socialist Caucus, Social Work

CE Credits: Medical (CME), Health Education (CHES), Nursing (CNE), Public Health (CPH)

See more of: Genomics Forum