5045.1 Genetics and genomics health disparities

Wednesday, November 10, 2010: 8:30 AM - 10:00 AM
Oral
The rapid advances of genetic and genomic research have great potential to improve the publicís health. The potential impacts on health disparities of our evolving understanding and new technologies need to be carefully considered. The papers presented in this session will address access to genomic services, the implications of racial and ethnic identity in school-based genetics education, and participation in genetics research. The first paper will describe whether cancer genomic testing for breast and ovarian cancer and colorectal cancer is being used appropriately in the state of Oregon. The presentation will present data from multiple state and national sources exploring the use of cancer genomic testing. The second paper discusses the efforts of the Mountain States Genetics Regional Collaborative Center (MSGRCC) to improve access to genetic services for individuals affected with heritable disorders. The presentation will focus particularly on access to newborn screening as an example. In addition, ongoing efforts to promote understanding of genetics and newborn screening among first nation tribes will be described. In the third paper, implications of genetics research for the understanding of racial and ethnic identity will be addressed. This presentation will focus on the salience of the information for genetics education in middle and high school. Specific recommendations for curricular components will be presented. The fourth presentation will discuss research on intentions to donate blood and/or tissue samples for genetics research among African Americans. Prior research has shown that African American utilization of genetic services is low, but there is limited empirical data on intentions to participate in genetics research which may not be personally beneficial. This presentation will describe the implications of study purpose and research outcomes for participation intentions. Together, these papers will present some of the many ways in which genetics and genomics research and practice might impact health disparities.
Session Objectives: Describe issues in access to newborn screening in a large geographical area. Discuss the implications of racial and ethnic identity in school-based genetics education. Identify two factors that impact intentions to participate in genetics research among African Americans.
Moderator:
Nelson Atehortua, MD, MPH

8:45am
MSGRCC Projects Promote Access to Genetic Services
Joyce Hooker, Liza M. Creel, MPH, Janet Thomas, MD, Murray Brilliant, PhD and Celia Kaye, MD, PhD
9:00am
Racial-ethnic identity - The "missing piece" in school-based genetics education
Stephen M. Modell, MD, MS, Toby Citrin, JD and Sharon LR Kardia, PhD
9:15am
Intentions to participate in genetics research among African Americans
Chanita Hughes-Halbert, PhD, Benita Weathers, MPH, Brandon Mahler, BA and Jasmine McDonald, PhD
Discussion

See individual abstracts for presenting author's disclosure statement and author's information.

Organized by: Genomics Forum
Endorsed by: Socialist Caucus

CE Credits: Medical (CME), Health Education (CHES), Nursing (CNE), Public Health (CPH)

See more of: Genomics Forum