4359.0 Building Trust Between Minorities and Researchers

Tuesday, November 9, 2010: 4:30 PM - 6:00 PM
This session will describe the social and historical context which forms the Building Trust Bioethics Infrastructure Initiative at the University of Pittsburgh Graduate School of Public Health. The initiative’s methods used to form an understanding of the barriers and facilitators to underrepresented minorities’ participation in medical research will be presented. The perceptions of minorities and researchers will be discussed as well as best practices in recruitment and retention as identified through surveys and in-depth interviews. Additionally, the session will discuss the next steps needed to inform curricula development for communities and research investigators to strengthen the capacity of investigators and communities to effectively work together for the purposes of increasing participation of minorities in research.
Session Objectives: 1. Describe historical factors leading to the development of human subject protections and federal mandates for inclusion in research; 2. Explain key factors that affect minority participation in research; and 3. Describe potential implications for education of community members, researchers and IRBs.

Bioethics of Minority Participation in Research: Opportunities and Challenges
Stephen B. Thomas, PhD, Sandra C. Quinn, PhD, James Butler, DrPH, MEd, Craig S. Fryer, DrPH, MPH and Mary A. Garza, PhD, MPH
Challenges and Opportunities in Recruitment and Retention: Perspectives from the Research Community
James Butler, DrPH, MEd, Sandra C. Quinn, PhD, Craig S. Fryer, DrPH, MPH, Mary A. Garza, PhD, MPH and Stephen B. Thomas, PhD
Putting Ourselves under the Microscope: Researchers Examine Their Experiences regarding the Engagement and Recruitment of Underrepresented Minority Populations
Craig S. Fryer, DrPH, MPH, Stephen B. Thomas, PhD, James Butler, DrPH, MEd, Mary A. Garza, PhD, MPH and Sandra C. Quinn, PhD
To Participate or Not: Factors Associated with Minority Communities' Willingness to Engage in Research
Mary A. Garza, PhD, MPH, Sandra C. Quinn, PhD, Craig S. Fryer, DrPH, MPH, James Butler, DrPH, MEd and Stephen B. Thomas, PhD
No More Excuses: Building Trust and Capacity through the Bioethics Research Infrastructure Initiative
Sandra C. Quinn, PhD, Stephen B. Thomas, PhD, Mary A. Garza, PhD, MPH, Craig Fryer, DrPH and James Butler, DrPH

See individual abstracts for presenting author's disclosure statement and author's information.

Organized by: Ethics SPIG

CE Credits: Medical (CME), Health Education (CHES), Nursing (CNE), Public Health (CPH)

See more of: Ethics SPIG