240725 Frankly Speaking About Cancer (FSAC): A national model of success for cancer education and patient empowerment

Monday, October 31, 2011

Ivy Ahmed, MPH, CHES , Education and Outreach, Cancer Support Community, Washington, DC
Allison Harvey, MPH , School of Public Health and Health Services, The George Washington University, Washington, DC
Marni Amsellem, PhD , Education and Outreach, Cancer Support Community, Washington, DC
For ten years, Cancer Support Community has developed and provided Frankly Speaking About Cancer (FSAC), an educational series offering an in-depth look into a variety of concerns faced by cancer patients and their loved ones. The FSAC model is guided by Social-Cognitive Theory, and combines educational booklets, professionally-led workshops, and tailored web-content to educate and empower those affected by cancer to become active partners with their healthcare team. FSAC topics span a variety of tumor types as well as commonly-faced issues. In 2009, 1,195 FSAC workshop participants completed post-workshop evaluations (approximately 70% response rate, averaged across six workshop types). Workshops topics included: Advanced Breast Cancer, Colorectal Cancer, Liver Cancer, New Discoveries, Coping with the Cost of Care, and Cancer Treatment. Nearly 80% of workshop attendees were Caucasian, and 44.5% were between 56-69 years. Across workshops nearly all participants (97%) would recommend the workshop to others facing similar concerns. All workshop participants reported a significant gain in knowledge about the topic post-workshop compared to pre-workshop levels (F= 76.7, p <.01). Workshop outcomes varied across topic, but large gains were seen in the critical role of communicating openly and being an active participant with their healthcare team. Most workshop attendees (88%) reported increased self-efficacy in being able to ask questions to their healthcare team to inform treatment decisions and discussing side effects with their doctors. Workshop results strongly suggest the educational model is an effective model for cancer patient education. Workshop evaluation results are being used to inform future iterations of program.

Learning Areas:
Administer health education strategies, interventions and programs
Conduct evaluation related to programs, research, and other areas of practice
Implementation of health education strategies, interventions and programs
Social and behavioral sciences

Learning Objectives:
1. Identify key components of a successful multi-modal cancer patient education and empowerment model program. 2. Discuss the role of cancer patient education in informed patient - healthcare communication.

Keywords: Cancer, Health Education Strategies

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have been engaged in the development and delivery of the Frankly Speaking About Cancer programs at the Cancer Support Community.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.