Ethical conduct of comprehensive diabetes control: Organ donation education in American Indian communities

Background and Issues: American Indians are over-represented on the renal transplant waiting list, largely due to a soaring prevalence of type 2 diabetes. Comprehensive diabetes prevention and control efforts in tribal communities must consider this critical tertiary prevention need. Description: Organ donation education for American Indian tribes is needed, yet there are numerous cultural beliefs and ethical considerations to consider in the planning, implementation, and evaluation of educational efforts. This presentation will reflect on ethical considerations in the conduct of two organ donation education research studies with American Indian tribes over a seven year period. Lessons Learned: Community advisors are needed to guide the ethical conduct of research and education. Traditional beliefs and spirituality are critical components of organ donation education in tribal communities. Community values of generosity and respect for elders along with the oral tradition of story-telling are essential to include in the development of educational messages, methods of program delivery, and choice of messenger. Recommendations: Ethical conduct or organ donation education in tribal communities must consider the cultural context and the reality of diabetes in tribal communities. Education is needed and should be guided by tribal advisors.