255891 Recruiting Deaf/ASL- users for Research Participation: Success!

Wednesday, October 31, 2012 : 8:53 AM - 9:11 AM

Elaine Jones, PhD, RN, FAANP , College of Nursing, University of Arizona, Tucson, AZ
Amy Drewek, MA, CI/CT, NIC Master , College of Nursing, Univeristy of Arizona, Tucson, AZ
Research about Deaf adults who use sign language has been hampered by difficulty recruiting sufficient numbers of study participants. Traditional recruitment strategies may be ineffective with this population due to communication barriers (hearing loss, American Sign Language/ ASL, limited literacy), cultural barriers and the absence of databases distinguishing adults with hearing loss who use ASL vs those who do not use ASL. There is evidence that Deaf adult/ ASL users have less access to health-related resources than others, though there is no evidence that their need for health resources is less. We are pilot testing the “Signs of Health Intervention”(SoHi) , designed to reduce risk for cardiovascular disease among Deaf adults who are at risk for CVD. SoHi is a 12-week (24 hr) program focusing on heart-healthy nutrition and with weekly walking groups and taught entirely in ASL by a Deaf teacher . We applied recruitment strategies that have been successful with other hard-to-reach linguistic/ethnic minority groups. We recruited Deaf adults from existing Deaf social groups, delivered the intervention to those same social groups at the settings where they were already meeting on a regular basis, in ASL by a Deaf teacher. For example, we recruited participants at two all-Deaf churches, taught the SoHi classes after church each Sunday, and provided heart-healthy food for participants. Participants also met to walk together between classes. An unexpected problem was that some people in the groups did not meet inclusion criteria but wanted to participate with the others in their group.

Learning Areas:
Diversity and culture
Implementation of health education strategies, interventions and programs
Planning of health education strategies, interventions, and programs

Learning Objectives:
1) List examples of settings with existing Deaf groups 2) Explain why this strategy was successful in recruiting Deaf adults for study participation

Keywords: Community-Based Health Promotion, Health Behavior

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have been the principal investigator of multiple federally funded grants focusing on health promotion/risk reduction among Deaf adults who use American Sign Language (ASL). I have developed innovative strategies for delivering health education to Deaf adults related to CVD risk reduction, smoking cessation and breast cancer screening. I also have expertise in translating written quetionnaires into ASL.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.