A Model for Research Integration in Utah: Academic Heads with Community Faces

Background: Community Faces of Utah (CFU) is comprised of leaders from five underserved populations (African refugee, African American, American Indian, Hispanic/Latino and Pacific Islander), with the University of Utah and Utah Department of Health. This team has successfully operated on principles of collaboration and mutual respect for the past four years. In 2011, the Utah Women's Health Coalition, based at the university, invited CFU to participate in a clinical trial focused on lifestyle changes for women. The first stage of the study included a needs assessment to identify the fundamental cultural and gender barriers that contributed to high rates of obesity in these disparate groups. The next stage involved tailoring interventions for the specific characteristics for each community. Funding for this community-based participatory research was provided by the federal Office of Women's Health. Methods: Results from five focus groups (n=60) were used to assess unique needs and challenges for each community. At CFU's request, focus groups were co-facilitated with a community representative and academic researcher. CFU members meet with principle investigators weekly and have recommended substantial modifications to the intervention design. Results: This interaction has benefited both academia and communities. All community members involved in the study have received training on HIPAA, IRB, and research protocol. Within general guidelines, each community is empowered to determine implementation protocol. Conclusion: Input through a CBPR approach is essential for developing effective community interventions. In this case, the intervention has a greater potential for success because it is anchored in community norms and values.