142nd APHA Annual Meeting and Exposition

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296983
Participants' Satisfaction with Initial Contact and Examination Visit: Results from the Hispanic Community Health Study/Study of Latinos (HCHS/SOL)

142nd APHA Annual Meeting and Exposition (November 15 - November 19, 2014): http://www.apha.org/events-and-meetings/annual
Tuesday, November 18, 2014

Ana Talavera, MPH , Graduate School of Public Health, San Diego State University Research Foundation, San Diego, CA
Christina Buelna, MA , Gsph, San Diego State University Research Foundation, Chula Vista, CA
Rebeca Espinoza, MPH, MA , Institute for Behavioral and Community Health, Graduate School of Public Health, San Diego State University, San Diego, CA
Sheila Castaneda, PhD , Institute for Behavioral and Community Health, Graduate School of Public Health, San Diego State University, San Diego, CA
Aida L. Giachello, PhD , Midwest Latino Health Research, Training, and Policy Center, University of Illinois at Chicago, Chicago, IL
Johanne Hernandez, MBA RN , San Diego State University Research Foundation, Chula Vista, CA
Madeline Crespo-Figueroa, BS , Albert Einstein College of Medicine, Bronx, NY
Maria de los Angeles Abreu, MPA , University of North Carolina, Chapel Hill, NC, Collaborative Studies Coordinating Center, Chapel Hill,, NC
Carlos Sanchez, MD , UIC-Department of Medicine, Institute for Minority Health Research, Chicago, IL
Rosalinda Rodriguez, BS , San Diego State University Research Foundation, San Diego, CA
Krista Perreira, PhD , Public Policy, University of North Carolina, Chapel Hill, NC
There are multiple barriers to recruitment and retention of ethnic minorities in longitudinal cohort studies. Individual barriers to participation in research studies include medical mistrust, fear of the misuse of genetic material collected, lack of awareness and/or understanding of what participation in research studies entails. Inaccessible study locations, cultural and language barriers, time commitment and staff attention often pose recruitment barriers.

This paper aims to explore perceived satisfaction and burden among Hispanic/Latinos (H/L) individuals who participated in a 7.5 hour baseline examination for the Hispanic Community Health Study/Study of Latinos (HCHS/SOL), a large cohort study of 16,415 adults aged 18 to 74 years living in four US cities (Bronx, NY; Chicago, IL; Miami, FL; and San Diego, CA). Participants completed a self-administered survey that assessed levels of satisfaction with recruitment, study examination and staff attention. Approximately ¼ of the cohort participated in the interview, results from this study demonstrate that culturally- and linguistically competent staff, and recruitment and informed consent multimedia tools positively influence the satisfaction of participants. These results can inform recruitment and enrollment strategies for future longitudinal cohort studies.

Learning Areas:

Epidemiology
Public health or related research

Learning Objectives:
Demonstrate that culturally- and linguistically competent staff, and recruitment and informed consent multimedia tools positively influence the satisfaction of participants in research studies Identify barriers to participation in longitudinal cohort long research studies Identify recruitment and enrollment strategies of Hispanics/Latinos for future longitudinal cohort studies

Keyword(s): Research, Latinos

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have been the program manager for the San Diego Field Center of the Hispanic Community Health Study/Study of Latinos (HCHS/SOL). As such, I am directly responsible for the collection of data for analysis, directly involved in the development of IRB protocols and management of the fiscal components of this large contract. I oversee enrollment, retention, community relations of the study cohort.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.

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