142nd APHA Annual Meeting and Exposition

Annual Meeting Recordings are now available for purchase

Medical Mistrust Among Family Members of Adults with Intellectual Disabilities

142nd APHA Annual Meeting and Exposition (November 15 - November 19, 2014): http://www.apha.org/events-and-meetings/annual
Monday, November 17, 2014 : 1:10 PM - 1:30 PM

Joanne Wilkinson, MD, MSc , Department of Family Medicine, Boston University School of Medicine/Boston Medical Center, Boston, MA
Nechama W. Greenwood, CPM, MA , Department of Family Medicine, Boston University School of Medine, Boston, MA
Background. Women with intellectual disabilities (ID) have low rates of breast cancer screening, and these rates are lowest among women who live with their families. Barriers to screening may be different in this group of women.

Objective/Hypothesis. We undertook a qualitative study to explore potential barriers to screening for women with ID who lived with their families.

Methods. 16 family members underwent semi-structured interviews with prompts focused on health care experiences, cancer screening, and breast health.

Results. Family members reported mistrust of healthcare professionals that had evolved during the early years of caring for their child. While this mistrust often resulted in their being stronger advocates for their child’s care, it also caused them to question and sometimes not heed recommendations regarding screening.

Conclusions. The phenomenon of mistrust should be considered when crafting interventions to improve adherence to healthcare recommendations among women with ID who live with family caregivers.

Learning Areas:

Advocacy for health and health education
Assessment of individual and community needs for health education
Ethics, professional and legal requirements
Provision of health care to the public

Learning Objectives:
List 3 reasons that family members of adults with intellectual disabilities may experience/express mistrust of the medical system, health care providers or medicine Describe 2 implications that medical mistrust may have for health care access and outcomes of adults with intellectual disabilities

Keyword(s): Disabilities, Marginalization

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am an early career investigator focused on health care access and disparities for women with intellectual disabilities (ID), including cancer screening and primary care, reproductive health and aging among women with ID. This study was conducted in partnership with my mentor, Dr. Joanne Wilkinson, a leader in primary care access for adults with intellectual disabilities who holds multiple federal grants related to increasing access to care for this population.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.