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300665
Patient- reported outcome surveillance and geographic variation for older cancer survivors: Using the SEER-MHOS linked data resource
Monday, November 17, 2014
: 8:30 AM - 8:50 AM
Erin E. Kent, PhD
,
Outcomes Research Branch, Applied Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD
Anita Ambs, MPH
,
Applied Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD
Steven Clauser, PhD
,
Patient-Centered Outcomes Research Institute, Washington, DC
New opportunities to conduct surveillance research of patient-reported outcomes (PROs) research in cancer survivors are emerging, in part due to the now existing linkage of cancer registries like the National Cancer Institute’s Surveillance Epidemiology and End Results (SEER) program with surveys, such as the Medicare Health Outcomes Survey (MHOS). The linked data resource SEER-MHOS provides PRO data on a nationwide sample of individuals 65 and older enrolled in Medicare Advantage Organizations (MAO), managed care health plans. The MHOS is an ongoing study that has been recruiting multiple cohorts since 1998. Individuals ages 65 and over who are enrolled in participating MAO are randomly sampled, administered the survey by mail or telephone, and then re-surveyed two-years later. Twelve cohorts, representing over 82,000 patients linked to the SEER cancer registry and over 1.5 million MAO enrollees without a history of cancer are currently available for analysis. This presentation will provide an overview of the methodology and sample characteristics of this publicly available dataset. Findings to date from research conducted with SEER-MHOS will also be reviewed, including the impact of diagnosis and treatment on health-related quality of life in older cancer survivors as compared to individuals with no history of cancer. We will discuss racial/ethnic, geographic and health plan variation in PROs among older survivors. We will also discuss future opportunities and challenges for using SEER-MHOS and present ideas for improving existing measures, expanding coverage of existing surveillance efforts, focusing on pressing and timely research topics, and improving dissemination of findings.
Learning Areas:
Chronic disease management and prevention
Epidemiology
Provision of health care to the public
Public health or related research
Social and behavioral sciences
Learning Objectives:
Evaluate the history, structure, and current findings related to patient-reported outcome surveillance and geographic variation in older cancer survivors in the SEER-MHOS data linkage.
Assess future opportunities for conducting patient-reported outcomes surveillance research in the SEER-MHOS data linkage.
Keyword(s): Outcomes Research, Quality of Life
Presenting author's disclosure statement:Qualified on the content I am responsible for because: I am qualified to be an abstract Author on the content I am responsible for because:
I conduct epidemiologic and health services research in the area of cancer control and survivorship. My areas of interest include social epidemiology, patient-reported outcomes measurement and surveillance, and mixed methods research methodology. I serve as the scientific lead for the SEER-Medicare Health Outcomes Study.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines,
and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed
in my presentation.
