Development of a Measure of the Process of Informed Decision-Making about Prenatal Genetic Screening in Expectant Women
Adequate knowledge in decision making about health, or informed decision-making, requires a thorough consideration of medical harm versus benefit, personal beliefs and values, familial input, and societal norms and pressures. Unfortunately, many medical decisions are made based on the interpretation of information a health care professional provides. In prenatal genetic screening, expectant couples are, at times, not informed about all aspects of the screening process and are thus only provided with information they retrieve or the health care professional deems important. This research presentation will describe the development of a valid and reliable measure of informed decision making in prenatal genetic screening (IDM-PGS) for clinical application.
Item response theory guided the development of a multidimensional instrument for IDM-PGS using an in-depth review of the literature and expert insight and feedback. After developing the instrument, content validity analysis through work with an expert panel and cognitive interviews with a small subset of expectant women will result in the final reliable and valid instrument for administration.
The content validity evaluation led to a reduction in instrument length from 85 items to 50 items to meet the content validity index requirements for development of an instrument. Cognitive interviews are ongoing for analysis and adaptation of the instrument prior to administration.
Assessing understanding of knowledge is a difficult in healthcare settings. Upon completion of development and psychometric testing, this multidimensional instrument for IDM-PGS can be applied in clinical settings to ensure expectant women are making informed decisions regarding genetic screening during their pregnancy.
Learning Areas:Administer health education strategies, interventions and programs
Advocacy for health and health education
Basic medical science applied in public health
Clinical medicine applied in public health
Communication and informatics
Public health or related education
Describe the development of a valid and reliable measure of informed decision making in prenatal genetic screening (IDM-PGS) for clinical application.
Keyword(s): Genetics, Perinatal Health
Qualified on the content I am responsible for because: I am a doctoral candidate and this topic area is my primary area of study that I have focused on for the past 6 years of doctoral study. I have immersed myself in the literature and am up to date on this topic.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.