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Building a statewide HIV surveillance and care data warehouse in North Carolina: A collaborative approach
Objective: Building on this data-sharing success NC-LINK is developing a statewide data warehouse integrating HIV care and surveillance data to continue to improve health information exchange in North Carolina, and thereby surveillance and patient care.
Methods: In January 2013, NC-LINK partnered with RDE Systems to conduct a technical assessment and develop a data warehouse plan proposal. This report focused on 4 statewide HIV data systems: NCEDSS, CAREWare, eHARS, and ADAP. The NC-LINK project created a data warehouse workgroup consisting of representatives of all state systems, state epidemiologists, HIV care providers and project partners. This group met on a regular basis throughout the year to collaborate on the data warehouse proposal.
Results: The collaborative NC-LINK data warehouse workgroup issued a final report that consisted of a technical assessment for the HIV data systems, an outline for the architecture of the data warehouse, and sample reports that could be generated via the warehouse. By creating a broad collaboration of individuals within the NC-LINK data warehouse workgroup, the group was successful in considering points of view from all possible users. This allowed the data warehouse design to focus on architecture and planning that would be helpful for all potential users, such as state-level epidemiologists analyzing data or HIV care providers conducting clinical quality assurance.
Conclusions: Collaboration is critical when working with multiple systems and end-users of a potential data system. A coordinated statewide HIV data warehouse has the potential to improve data quality and reporting and thus impact clinical care for HIV patients.
Learning Areas:
Communication and informaticsLearning Objectives:
Identify areas for collaboration between public health and clinical care providers.
Demonstrate the first steps in conducting a technical assessment and data plan between separate and independent data systems.
Describe the potential uses of a data warehouse containing state-wide HIV surveillance and care data.
Keyword(s): HIV/AIDS, Information Technology
Qualified on the content I am responsible for because: I have been a research assistant on the NC-LINK project for the past year and have worked closely with the NC-LINK team.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.