“Art helped me to find out that I could do it again”: Experiences of stroke survivors, artists and healthcare staff of an arts based creative engagement intervention as part of in-patient rehabilitation

Introduction:

Creative arts programmes can improve psychosocial outcomes in long-term conditions, however little evidence of effectiveness of art interventions after stroke exists. This study aimed to explore experiences of participation in an existing visual art based creative engagement intervention for stroke (CEI) to theoretically model the intervention and identify outcomes for a pilot trial.

Method:

Sample and Data Collection: Semi-structured interviews with 11 stroke survivors who had completed the CEI during in-patient rehabilitation and 3 artists who led the CEI. Focus groups (n=2)  with health professionals in rehabilitation units delivering the CEI. Experiences, beliefs and attitudes about the CEI were explored.

Data Analysis: Analysis was facilitated using the software package NVivo9 and involved a structured and systematic Framework Analysis to derive themes and facilitate interpretation.

Result

Survivors and staff viewed art as a positive enhancement to in-patient rehabilitation because it facilitated social interaction and provided survivors with creative opportunities.  The informal social approach contrasted with more regimented rehabilitation programs of therapy.  Survivors reported an improved range of psychological, social, affective, communication and physical benefits from participation. Benefits appeared to stem from the social and creative processes that enhanced self-efficacy, hope and self-esteem. Survivors appeared empowered by the opportunity for personal decision-making and expression.

Conclusion:

This modelling phase has identified mechanisms of action and outcomes that will inform a pilot trial of the CEI. The trial aims to provide evidence to support an effective adjunct role for CEI within multidisciplinary stroke rehabilitation.