142nd APHA Annual Meeting and Exposition

Annual Meeting Recordings are now available for purchase

309094
Disparities in person-centered outcomes among recipients of Medicaid long-term services and supports: Experiences of elders, working age adults with physical disabilities, and working age adults with developmental disabilities

142nd APHA Annual Meeting and Exposition (November 15 - November 19, 2014): http://www.apha.org/events-and-meetings/annual
Wednesday, November 19, 2014 : 8:30 AM - 8:50 AM

Sarita L. Karon, PhD , Aging, Disabilities, and Long-Term Care, RTI International, Madison, WI
Mary Schlaak, MSW , Center for Health Systems Research & Analysis, University of Wisconsin - Madison, Madison, WI
Long-term services and supports (LTSS) assist people with disabilities with functional and health needs. Recent years have seen increasing understanding that the purpose of these supports must be to assist people to have the desired quality of life, including living where they desire, associating with the people they wish, and engaging in desired activities. However, few measures have existed to assess the success of LTSS in achieving these goals. This study uses one such approach, PEONIES, to identify individually-desired outcomes, necessary supports, and success of those supports in achieving the outcomes. Supports included those provided as Medicaid paid services, as well as through other community resources, family, friends, and one’s personal resources. Interviews were conducted with a representative sample of adults with disabilities receiving LTSS throughout Wisconsin.  The analyses presented here compare the experiences of working age adults with physical disabilities, working age adults with developmental disabilities, and elders. Overall, those with physical disabilities were least likely to have the necessary supports to achieve their desired outcomes, but variations by type of outcome (e.g., employment, health, living situation) were found. The presentation will highlight key areas of disparity, and will discuss potential strategies for reducing disparities and improving quality of life for all.

Learning Areas:

Conduct evaluation related to programs, research, and other areas of practice

Learning Objectives:
Describe variation in the kinds of outcomes desired by members of different groups receiving Medical long term services and supports Compare the types, availability, and adequacy of supports needed by different population groups Explain how variation in support needs and provision result in disparities Discuss strategies for reducing disparities and enhancing person-centered outcomes

Keyword(s): Quality of Life, Patient-Centered Care

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have been the principal or co-principal investigator of numerous projects over two decades that develop and implement measures of quality of long-term care services and quality of life. I led the development of PEONIES, the method that was used to measure the person-centered outcomes presented in this study, and the analysis of data collected by an independent group on behalf of the State of Wisconsin.
Any relevant financial relationships? Yes

Name of Organization Clinical/Research Area Type of relationship
University of Wisconsin - Madison health services research Employment (includes retainer)

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.