142nd APHA Annual Meeting and Exposition

Annual Meeting Recordings are now available for purchase

309573
Participatory cross case analysis of five community-based research ethics review processes

142nd APHA Annual Meeting and Exposition (November 15 - November 19, 2014): http://www.apha.org/events-and-meetings/annual
Monday, November 17, 2014 : 10:30 AM - 10:50 AM

Nancy Shore, PhD , Community-Campus Partnerships for Health, Seattle, WA
Eric Wat , Special Service for Groups, Los Angeles, CA
Lola Sablan-Santos , Guam Communications Network, Long Beach, CA
Alice Park, MPH , Community-Campus Partnerships for Health, Seattle, WA
Mei-Ling Isaacs, MPH , Papa Ola Lokahi, Honolulu, HI
Elmer Freeman, MSW, PhD(c) , Center for Community Health Education Research and Service, Boston, MA
Elaine Drew, PhD , Department of Population Health, Medical College of Wisconsin, Milwaukee, WI
John Cooks , Galveston Island Community Research Advisory Committee, Houston, TX
Paige Castro , Community-Campus Partnerships for Health, Seattle, WA
Sarena D. Seifer, MD , Community Campus Partnerships for Health, Seattle, WA
Introduction: To ensure the ethics and integrity of the research in which they and their communities are engaged, a growing number of community groups have developed their own research ethic review processes that operate independently or in conjunction with institution-based Institutional Review Board (IRBs). Our prior study identified 109 community groups across the U.S. with such processes in place. We used a participatory process to conduct a national collaborative study documenting the contributions they make to ensure the ethics and integrity of community-engaged research (CEnR). To gain an in-depth understanding of how these review processes function, CCPH partnered with five community-based organizations to conduct a cross-case analysis.

Approach: In year one, we analyzed data obtained through structured interviews, focus groups and reviews of documents from 2 community IRBs and 3 community-based research review committees. In year two, we conducted a cross-case analysis drawing on the individual case studies and a focus group held with the study team.

Results: Cross-case analysis revealed case differences that included demographics of the communities served and practices/policies (i.e., voting practices, membership criteria).  Case similarities included underlying commitments to the community, rationale for developing a review process, and ethical issues considered.

Discussion: This session will provide an overview of the study methodology, describing our partnership formation and collaboration. We will discuss the different models of community-based review processes and the benefits and challenges of implementing a review process. We will also provide an overview of study findings.

Learning Areas:

Ethics, professional and legal requirements
Public health or related laws, regulations, standards, or guidelines
Public health or related organizational policy, standards, or other guidelines
Public health or related research

Learning Objectives:
Explain key components of a participatory cross-case study methodology Discuss different models of community-based review processes Discuss benefits and challenges of operating a community-based review process

Keyword(s): Ethics, Community-Based Research (CBPR)

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have been a co-principal investigator with Sarena Seifer (Executive Director of Community-Campus Partnerships for Health) since 2007 when we were awarded a Greenwall Foundation grant to study community-based research ethics review processes. The submitted abstracts are a result of our continued work on a NIH National Collaborative study partnering with five community-based research ethics review processes.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.