311075
Promising practices and recommendations for community-based research ethics review processes: Findings from a national collaborative study
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Approach: In year one, we analyzed data obtained through structured interviews, focus groups and reviews of documents from 2 community IRBs and 3 community-based research review committees. In year two, we conducted a cross-case analysis drawing on the individual case studies and a focus group held with the study team.
Results: Cross-case analysis of the 5 community-based research review processes revealed shared policies and practices that support their focus on community-level protection. The findings revealed a number of promising practices and recommendations for community groups, institution-based IRBs, funding agencies and policy makers.
Discussion: Our study findings uncover the contributions that community IRBs and community-based research review committees make in ensuring the ethics of CEnR. Our discussion will focus on next steps to support the continued development and enhance the effectiveness and impact of community-based research review processes.
Learning Areas:
Ethics, professional and legal requirementsPublic health or related laws, regulations, standards, or guidelines
Public health or related organizational policy, standards, or other guidelines
Public health or related research
Learning Objectives:
Identify promising practices and policies for community-based review processes.
Describe policy changes that could strengthen the ethics of CEnR.
Identify changes funders could implement to ensure the ethics of CEnR.
Keyword(s): Ethics, Community-Based Research (CBPR)
Qualified on the content I am responsible for because: I have been a co-principal investigator with Sarena Seifer (Executive Director of Community-Campus Partnerships for Health) since 2007 when we were awarded a Greenwall Foundation grant to study community-based research ethics review processes. The submitted abstracts are a result of our continued work on a NIH National Collaborative study partnering with five community-based research ethics review processes.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.