142nd APHA Annual Meeting and Exposition

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Elevating Community Voices in Clinical and Translational Research

142nd APHA Annual Meeting and Exposition (November 15 - November 19, 2014): http://www.apha.org/events-and-meetings/annual
Tuesday, November 18, 2014

Kent Key, MPH , Community Based Organization Partners, Flint, MI
Adam Paberzs, MPH , Michigan Institute for Clinical & Health Research, University of Michigan, Ann Arbor, MI
Patricia Piechowski, MPH, MSW , Michigan Institute for Clinical & Health Research, University of Michigan, Ann Arbor, MI
Karen Calhoun, MA , City Connect Detroit, Detroit, MI
Fran Talsma, MSW , Michigan Institute for Clinical and Health Research, University of Michigan, Ann Arbor, MI
Since 2007, community-based organizations throughout Michigan have partnered with the Michigan Institute for Clinical and Health Research (MICHR), a Clinical and Translation Science Award (CTSA). One of the primary goals of MICHR is to strengthen community-university partnerships and set research priorities that directly reflect patient and community needs. Despite increased efforts to support community-engaged research, significant changes are still needed to elevate community-defined priorities and community voice in decision-making, leadership, and research agenda-setting at our institution.

Recently, the Institute of Medicine (IOM) released a report of recommendations for CTSAs. One of the central recommendations reinforced the importance of community engagement in all phases of research; and stated more specifically that CTSAs should “ensure active and substantive community stakeholder participation in priority setting and decision making ... and in the leadership and governance of the CTSA Program.”

In this session, we will highlight key challenges and opportunities we have experienced in recognizing, identifying, and responding to community-defined health needs, and prioritizing those needs in health research. We will also share strategies that we have used to promote community leadership and decision-making within our CTSA’s governance and structure, and explore effective strategies that have been used by others across the country.

Implementation of the IOM recommendation’s and elevating community voice in research is no small task, but an extremely important one if we are to fully realize the CTSA’s long-term goal to “improve the health of our local communities and the nation”.

Learning Areas:

Public health or related research

Learning Objectives:
Describe case studies that illustrate challenges we have faced and successes we have achieved in elevating community voice in clinical and translational research. Discuss strategies to integrate community health priorities and community voice in CTSA decision-making, governance, and leadership. Create a platform for dialogue and sharing of best practices in aligning institutional research agendas with community-defined health needs.

Keyword(s): Community-Based Research (CBPR), Community-Based Partnership & Collaboration

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have advocated for community involvement in research for several years. I am Deputy Director of the Community Based Organization Partners in Flint, MI, a grassroots coalition of community-based coalitions working to establish community as a respected institution. I also work with the University of Michigan's CTSA and was involved in a project to assess local community priorities, concerns, and needs in clinical and health research.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.

Back to: 4182.0: Lessons learned from CBPR projects