142nd APHA Annual Meeting and Exposition

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Let's Talk about Alzheimer's/Hablemos del Alzheimer - Knowledge, Attitudes, and Behavior of Hispanic caregivers about Alzheimer's Disease

142nd APHA Annual Meeting and Exposition (November 15 - November 19, 2014): http://www.apha.org/events-and-meetings/annual
Monday, November 17, 2014 : 10:30 AM - 10:42 AM

Magdalena Castro Lewis , National Alliance for Hispanic Health, Washington, DC
Edgar Gil, MBA , National Alliance for Hispanic Health, Washington, DC
The National Alliance for Hispanic Health partnered with Novartis Pharmaceuticals, to develop a culturally and linguistically appropriate framework and resources that will effectively reach Hispanic consumers with messages and materials to increase (1) understanding of Alzheimer’s Disease (AD) in Hispanic communities, and (2) access to resources available in their communities. The Alliance conducted an environmental scan of the existing literature on Hispanics and AD as well as community panel discussions (CPD) with Hispanic caregivers of a person with AD and healthcare providers offering services to Hispanic AD patients in: San Ysidro, CA; Philadelphia, PA; and, Miami, FL.  The Alliance will present its findings, as well as recommendations for the development of the framework for Let’s Talk about Alzheimer’s initiative.  Results: A total thirty-one (31) caregivers and 20 health providers participated in the CPDs. The findings from the CPDs included but are not limited to: (1) Participants had heard of AD, but did not know or start caring to find out about it until the person they care for was diagnosed. (2) There is a tendency in the Hispanic culture to think that memory loss is part of normal aging; this normalization of forgetfulness as well as denial are perceived as the most important barriers to early diagnosis. (3) There is no “caregiving team” and usually the primary caregiver recruits help after he/she is burnt- out.(4) Hispanics have a very strong negative opinion toward the possibility of taking their family member with Alzheimer’s to be cared for in a nursing home.

Learning Areas:

Assessment of individual and community needs for health education
Chronic disease management and prevention
Implementation of health education strategies, interventions and programs

Learning Objectives:
Describe the barriers within the Hispanic community for early diagnosis of Alzheimerís Disease Discuss the benefits of public health partnerships to obtain feedback from communities representing different Hispanic subgroups. Identify actionable steps to implement a campaign with basic information on AD early signs, and a clear message that memory loss is not a normal part of aging.

Keyword(s): Health Disparities/Inequities, Latinos

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have 20 years experience and as Vice President for Programs at the Alliance lead the community health programs portfolios including serving as the principal investigator of the Letís Talk about Alzheimerís initiative.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.