142nd APHA Annual Meeting and Exposition

Annual Meeting Recordings are now available for purchase

A model for publishing with community partners as part of community-based participatory research: Case studies from Native American tribal communities

142nd APHA Annual Meeting and Exposition (November 15 - November 19, 2014): http://www.apha.org/events-and-meetings/annual
Monday, November 17, 2014 : 1:15 PM - 1:30 PM

Valarie Blue Bird Jernigan, DrPH, MPH , College of Public Health, University of Oklahoma Health Sciences Center, Tulsa, OK
Isaiah Brokenleg, MPH , Community Transformation Grant, Great Lakes Inter-Tribal Council, Lac du Flambeau, WI
Margie Burkhart, BA , Comprehensive Cancer Program, Cherokee Nation Health Services Group, Cherokee Nation, Tahlequah, OK
Cornell Magdalena , Department of Public Health, Jemez Health and Human, Jemez Pueblo, Jemez Pueblo, NM
Candace Sibley, MSPH , Robert Wood Johnson Foundation, Atlanta, GA
Kristyn Yepa , Notah Begay III Foundation, Santa Ana Pueblo, NM
Background: Trustworthy, well-written reports, particularly written from a community perspective, are required to further the fields of translational science and community-based participatory research (CBPR).  As such, communities are increasingly being called upon to share their expertise within the published literature.  However, the process of engaging community and academic partners in co-writing and publishing is poorly understood.

Methods/Results: We developed a culturally-responsive process of tapping into the implementation expertise of Native American public health practitioners implementing environmental interventions to address obesity and smoking within three tribal communities across the United States.  The process first involved the development and documentation of a community narrative or story of their efforts.  They were then interviewed utilizing targeted questions or “prompts” in the Freirean tradition to solicit any key components required in a scientific manuscript that were not mentioned in their community narratives. The community narratives, supplemented with details critical to a scientific manuscript (e.g. sample size; sampling strategy) were then translated into the scientific manuscript format through an iterative process, grounded in the principles of cultural humility and participatory evaluation, and negotiated to capture a story of value to both scientific and community audiences. 

Conclusions: Community participation in the publication process is critical in sustaining funding for programs and expanding them, which often depends on providing evidence for decision-maker funders in the form of peer-review publications. Funding agencies aiming to increase the reach and translation of their efforts may seek to implement this type of mentoring and training as part of their funding requirements.

Learning Areas:

Conduct evaluation related to programs, research, and other areas of practice
Diversity and culture
Systems thinking models (conceptual and theoretical models), applications related to public health

Learning Objectives:
Identify the steps of developing a community narrative Describe how to translate the community narrative into a scientific manuscript format

Keyword(s): Evaluation, Participatory Research

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: As a Native American tribal member, registered nurse, and public health professional I have been the principal or co-principal of multiple federally funded grants focusing community health, with a specific focus area on obesity and diabetes prevention.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.