Online Program

In Their Own Words: Participant experiences during and after the transition to community living

Tuesday, November 3, 2015 : 1:10 p.m. - 1:30 p.m.

Kristi Fuller, MSW, Georgia Health Policy Center, Georgia State University, Atlanta, GA
Mohammad Khalaf, MPH, Georgia Health Policy Center, Georgia State University, Atlanta, GA
Money Follows the Person (MFP) is a Centers for Medicare and Medicaid rebalancing demonstration program that has transitioned older adults and individuals with physical or developmental disabilities from institutional to community settings since 2008. Participant comments were collected following the completion of post-transition surveys to gain insight into personal experiences as a complement to survey data.  The study population included 90 Georgia participants or proxy respondents from April 2011 to December 2014. An inductive content analysis was completed to establish categories and themes. Participants described both negative and positive transition experiences . Delays in receiving services, lack of flexibility among service categories, lack of clarity about program operations and procedures, and interacting with untrained staff were negative themes related to the transition process. Participants also described positive experiences with program staff and services such as housing placement and set-up. Untrained staff, high staff turnover, and limited transportation options were themes that described challenges with the transition. Participants also reported improvements in different aspects of QoL such as being happier, having improved living conditions and services, having increased independence and feeling part of a community. Qualitative data collected from participant comments provided rich insights pertaining to the MFP transition process and post-transition experiences. The analysis and reporting of the data is useful for decision-makers who consider opportunities for programmatic and policy change related to states approaches to rebalancing Medicaid long-term services and supports.

Learning Areas:

Conduct evaluation related to programs, research, and other areas of practice
Public health or related research
Social and behavioral sciences

Learning Objectives:
Demonstrate the value of open ended questions in data collection as a way to gain greater understanding of participant attitudes and perceptions of the program being evaluated. Describe context and personal experiences with the transition of MFP participants from institutional care settings into the community, as well as post-transition. Identify opportunities for improving the quality of life (QoL) of program participants by incorporating QoL considerations into decision-making across housing and long term care sectors and policy areas at the state level.

Keyword(s): Aging, Disabilities

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am a public health professional with over five years of experience. I am also one of the data analysts on the evaluation this abstract is on.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.