Online Program

334884
Advancing public health through the use of REDCap (Research Electronic Data Capture) software to promote healthy behaviors in women from 5 culturally diverse Utah communities


Monday, November 2, 2015

Sara Simonsen, PhD, CNM, MSPH, Department of Family & Preventive Medicine, Division of Public Health, University of Utah, Salt Lake City, UT
France A. Davis, MMC, MMin, Calvary Baptist Church, Salt Lake City, UT
Valentine Mukundente, Best of Africa, West Valley, UT
Ed Napia, Urban Indian Center of Salt Lake, Salt Lake City, UT
Ana Sanchez-Birkhead, PhD, WHNP-BC, APRN, Hispanic Healthcare Task Force, Salt Lake City, UT
O. Fahina Tavake-Pasi, MS, National Tongan American Society, Salt Lake City, UT
Jeannette Villalta, Hispanic Healthcare Task Force, Salt Lake City, UT
Brenda Ralls, PhD, Healthy Living Through Environment, Policy, and Improved Clinical Care Program, Utah Department of Health, Salt Lake City, UT
Patricia Eisenman, PhD, Exercise And Sport Science, Univeristy of Utah College of Heath
Kathleen Digre, MD, School of Medicine, University of Utah, Salt Lake City, UT
Heather Aiono, MEd, Center for Clinical and Translational Science, Community Engagement Core, University of Utah, Salt Lake City, UT
Sakineh Najmabadi, Department of Family and Preventive Medicine, University of Utah, Salt Lake City, UT
Grant Sunada, MPH, PhD(c), Community Faces of Utah, University of Utah, Salt Lake City, UT
Leanne Johnston, BS, Center of Excellence in Women's Health, University of Utah, Salt Lake City, UT
Louisa Stark, PhD, Center for Clinical and Translational Science, Community Outreach & Collaboration Core, University of Utah, Salt Lake City, UT
Steve Alder, PhD, Center for Clinical and Translational Science, Community Engagement Core, University of Utah, Salt Lake City, UT
Designing data collection tools for community-based research is challenging, particularly when lay community members collect data and deliver interventions in different languages.

We describe the novel application of REDCap (Research Electronic Data Capture) software in a community-based participatory research (CBPR) project evaluating the effectiveness of wellness coaching on changes in health behaviors in racially/ethnically diverse women.

Our randomized trial is designed to evaluate the impact of peer-led wellness coaching on women from African, African American, American Indian, Hispanic, and Pacific Islander communities.  REDCap is a secure, web-based program providing online survey and database management.  REDCap was programmed to assist coaches in collecting study data in Spanish, English, and Kirundi and delivering tailored wellness coaching messages via computer-generated prompts determined by participant-specific data (self-reported interview data, BMI, waist to hip ratio, blood pressure).  This interactive programming supports coaches in providing appropriate, personalized coaching.  

Our REDCap database includes interview questions in three languages and forms to collect clinical and behavioral data and track participant goal progress.  Prompts guide coaches through a tailored, non-directive goal-setting process.  Consent documents and audio recordings of interviews and coaching sessions are stored in the database.  REDCap scheduling modules, contact tracking forms, and a calendar help coaches to complete work in a timely manner.  A randomization module allows coaches to randomize participants into different coaching programs.  We have enrolled 398 women; 137 have finished the 12-month study and 400 will complete the study by 2016.  We will share coaches’ perceptions about REDcap including highlights, challenges, and adaptations made to address challenges.   

REDCap serves as an extremely useful tool in our CBPR work.  REDCap allows lay wellness coaches to collect high quality data in three languages, aids in the provision of appropriate and tailored wellness coaching advice, and allows coaches to guide participants through a personalized goal-setting process.

Learning Areas:

Administer health education strategies, interventions and programs
Assessment of individual and community needs for health education
Chronic disease management and prevention
Communication and informatics
Diversity and culture
Public health or related research

Learning Objectives:
Describe the novel application of REDCap (Research Electronic Data Capture) software to promote public health through a community-based participatory research (CBPR) project focused on racially/ethnically diverse women. Demonstrate the use of REDCap to provide tailored wellness coaching messages via computer-generated scripts with prompts determined by participant-specific data. Discuss challenges faced when utilizing REDCap as a data collection and wellness coaching tool for CBPR and adaptations made to overcome these challenges.

Keyword(s): Community-Based Research (CBPR), Technology

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am the co-Principal Investigator for the study, oversee the data collection and the project, wrote the abstract, and incorporated feedback.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.