294035
Determining stakeholder priorities for future research in the treatment of childhood autism: Early findings from a pcori pilot project
Tuesday, November 5, 2013
: 9:30 AM - 9:50 AM
Kathleen Thomas, PhD
,
Program on Mental Health Services Research, Cecil G. Sheps Center for Health Services Research, University of North Carolina, Chapel Hill, NC
Joseph Morrissey, PhD
,
Program on Mental Health Services Research, Cecil G. Sheps Center for Health Services Research, University of North Carolina, Chapel Hill, NC
Tim Carey, PhD
,
Cecil G. Sheps Center for Health Services Research, Chapel Hill, NC
Daniel Jonas, MD, MPH
,
Cecil G. Sheps Center for Health Services Research, Chapel Hill, NC
Alan Ellis, MSW
,
Cecil G. Sheps Center for Health Services Research, Chapel Hill, NC
Candice Wines
,
Cecil G. Sheps Center for Health Services Research, Chapel Hill, NC
Melissa McPheeters, PhD, MPH
,
Institute for Medicine and Public Health, Vanderbilt University Medical Center, Nashville, TN
Kristen Howard, MPH, MHIthEc, PhD
,
School of Public Health University of Sydney, Sydney, Australia
This study is a pilot project funded by PCORI, the Patient Centered Outcomes Research Institute, to develop methods of stakeholder engagement that support patient-centered outcomes research. This study compares findings from discrete choice experiments and prioritization exercises that capture stakeholder contributions to the knowledge development process. Autism is an instructive context for methods development because of a wide diversity of stakeholder opinion.
Learning Areas:
Public health or related research
Learning Objectives:
Discuss standard practice and mixed methods strategies for engaging stakeholders with mental health needs.
Describe the process and challenges of constructing discrete choice experiments in future research for a broad group of stakeholders.
List the characteristics of future research investment in the treatment of childhood autism that stakeholders value and how values differ by stakeholder characteristics.
Presenting author's disclosure statement:Qualified on the content I am responsible for because: I have been the principal investigator of several federally funded grants including a PCORI grant focusing on developing methods to engage stakeholders focusing on autism. I have published on issues access to care for autism and other mental health services, and I am currectly chair-elect of the Mental Healt Section of the American Public Health Association.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines,
and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed
in my presentation.
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