142nd APHA Annual Meeting and Exposition

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Ethical, Social & Community implications of Genomics: Where we are? Where are we going?

142nd APHA Annual Meeting and Exposition (November 15 - November 19, 2014): http://www.apha.org/events-and-meetings/annual
Monday, November 17, 2014: 2:30 PM - 4:00 PM
Oral
This session describes ethical, social, personal and community barriers to recruitment and community participation in different areas of genetics research, including but not limited to, biobanking, decision-making, and the incorporation of genomics into public health and clinical care. This session also discusses perspectives on future directions in guidelines, policies, and practice implications regarding genetic testing and complex diseases.
Session Objectives: Discuss existing and future ethical, social, and community challenges and how use the advances in genomics to empower communities towards better health.
Organizer:
Nelson Atehortua, PhD MPH MS
Moderator:
Stephen M. Modell, MD, MS

2:30pm
Barriers, Enablers and Strategies for Increasing Participation in Medical Genetic Research and Biobanking: Perspectives of Black African Immigrants/Refugees
Aaron Buseh, PhD, MPH, MSN, Patricia Stevens, PhD, FAAN, Sandra Underwood, PhD, FAAN, Sheryl T. Kelber, MS and Leolia Townsend, MS, MA
2:50pm
Genetic testing for autism: Perceptions among Taiwanese parents of children with autism spectrum disorders
Lei Xu, Ph.D., Shixi Zhao, B.S., Chen-Hui Wang, M.S., Tse-Yang Huang, Ph.D., Divya Talwar, M.P.H. and Lei-Shih Chen, Ph.D., P.T., C.H.E.S.
3:10pm
A critical ethnography of the social organization of multidisciplinary precision medicine review boards
Erica J. Sutton, PhD, Michele C. Gornick, PhD, Kerry A. Ryan, MA, Raymond De Vries, PhD and J. Scott Roberts, PhD
3:30pm
“Saving Lives” A Qualitative Study on a Cancer Registry's Experience on the Return of Individual Results from Genetic Research
Mercy Laurino, MS LGC, Anjali Truitt, PhC, MPH, Polly Newcomb, PhD MPH and Stephanie M. Fullerton, PhD

See individual abstracts for presenting author's disclosure statement and author's information.

Organized by: Genomics Forum
Endorsed by: Public Health Nursing, Public Health Social Work, APHA-Committee on Women's Rights

CE Credits: Medical (CME), Health Education (CHES), Nursing (CNE), Public Health (CPH) , Masters Certified Health Education Specialist (MCHES)

See more of: Genomics Forum
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